CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18834 Ulna length measure tool other text

The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length

 Supplemental Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11099 Pulmonary function test type

Type of pulmonary function testing performed

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

 Supplemental Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12317 Pulmonary function forced vital capacity early termination indicator

Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11100 Pulmonary function test position type

Participant's/subject's position for the pulmonary function assessment

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12310 Pulmonary function complete exhalation indicator

Whether the complete amount of air was exhaled from the participant/subject

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12318 Pulmonary function forced vital capacity peak flow indicator

Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11101 Pulmonary function test mouth apparatus type

Type of mouthpiece used for the pulmonary function test

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12311 Pulmonary function index of lung function type

The different functions of the lungs tested during pulmonary function test (PFT)

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12516 Pulmonary function lung function measurement

Numeric result of index function of the lungs tested

 Supplemental-Highly Recommended Pulmonary Function Testing False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11062 Maternal delivery age value

Mother's age at the time she gave birth to the participant/subject

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12603 Birth length value

Measurement of the participant's/subject's length at birth

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00002 Post conceptional age value

Gestational age plus postnatal age of the participant/subject

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12604 APGAR one minute score

Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12436 Polysomnography blood oxygen saturation mean REM sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) during rapid eye movement (REM) sleep from the polysomnography being reported

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12444 Polysomnography blood oxygen saturation drop hour total sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during total sleep time

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12452 Polysomnography end tidal carbon dioxide non-REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during non-rapid eye movement (REM) sleep

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 201 - 225 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.