CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1055-C12509	C12509	Imaging radio frequency coil category	Type of radio frequency (RF) coil(s) category used for the body part scanned	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C18875	C18875	Gene targeted variant mutational analysis other text	The free-text field related to 'Gene targeted variant or mutational analysis type', specifying other text. Type of targeted variant or mutational analysis performed for the gene	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12354	C12354	Respiratory intrapulmonary percussive ventilation or MetaNeb frequency	Frequency of intrapulmonary percussive ventilation or MetaNeb use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1063-C08018	C08018	Surgery age value	Age of the participant/subject at the time of the selected surgical procedure	Supplemental	Surgical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1059-C18879	C18879	Cardiovascular Holter predominant heart rhythm type other text	The free-text field related to 'Cardiovascular Holter predominant heart rhythm type', specifying other text. Type of heart rhythm the participant exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1992-C01700	C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Supplemental	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12736	C12736	Needle electromyography motor unit action potential activation type	The activation of the motor unit action potential measure during needle electromyography	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C17946	C17946	Spectroscopy sequence parameter repetition time duration	Duration, in ms, of the repetition time (TR) as a spectroscopic sequence parameter in the scan being reported	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12276	C12276	Biopsy and autopsy mitochondria abnormality type	Type of mitochondria abnormality in muscle biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12404	C12404	Respiratory oxygen use schedule daily hours value	Value of the number of hours of supplemental oxygen use per day	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C17811	C17811	Imaging phase partial Fourier value	Value of the phase partial Fourier ratio, if used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12233	C12233	Preservation technique used type	Type of preservation technique used to preserve the specimen	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12362	C12362	Respiratory other airway clearance method session time	Time it takes per session for the participant/subject to use the other airway clearance method	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C18684	C18684	Health insurance other text	The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1992-C01708	C01708	Lab test performed indicator	Indicator of whether the lab test has been performed on the participant/subject	Supplemental	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12744	C12744	Electrophysiology neuromuscular jitter mean consecutive difference abnormal count	Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1020-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Hand Held Dynamometry	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C18839	C18839	Respiratory postural drainage use other text	The free-text field related to 'Respiratory postural drainage use frequency' specifying other text. Frequency of postural drainage use	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12703	C12703	Electrophysiology sensory nerve segment length measurement	The sensory nerve segment length measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.