CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 1 - 25 of 1842

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C04504	ECG heart rhythm result type	Type of heart rhythm apparent on the electrocardiogram (EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C11100	Pulmonary function test position type	Participant's/subject's position for the pulmonary function assessment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C04512	ECG QTc interval	Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12808	Gene sequenced with no variant or mutation indicator	Whether there are additional genes sequenced with no variants or mutations detected	Supplemental-Highly Recommended	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C01707	Lab test abnormality significance type	Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject	Supplemental-Highly Recommended	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18833	Pulmonary function test not done other text	The free-text field related to 'Pulmonary function test not done reason' specifying other text. Reason the pulmonary function test was attempted but not completed	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12525	Biopsy and autopsy fiber abnormality type	Fiber type abnormalities on a muscle biopsy	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12315	Pulmonary function forced vital capacity leak indicator	Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C04505	ECG left ventricular hypertrophy status	Status of left ventricular hypertrophy on the electrocardiogram (EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C04513	ECG ST segment abnormality status	Status of an abnormal interval between the end of the QRS complex and the beginning of the T wave (ST segment) appears abnormal on the electrocardiogram (EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12526	Biopsy and autopsy type 1 predominance fiber percentage value	Percentage of Type 1 predominance fiber present	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12316	Pulmonary function forced vital capacity large value range indicator	Whether the two largest values of forced vital capacity (FVC) are within 10% of each other	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C04506	ECG right ventricular hypertrophy status	Status of right ventricular hypertrophy on the electrocardiogram (EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12298	Pulmonary function test not done reason	Reason the pulmonary function test was attempted but not completed	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C04514	ECG T wave abnormality indicator	Indicator whether the T wave appears abnormal on the electrocardiogram (EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12944	Variant mutational analysis performed indicator	Whether the variant or mutational analysis was performed on the participant/subject	Supplemental-Highly Recommended	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12287	Tissue specimen section count	Count of the number of sections from the tissue specimen that were taken and evaluated	Supplemental-Highly Recommended	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18873	Gene mutation detected digenic result specify	The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C01709	Lab test result status	Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed	Supplemental-Highly Recommended	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12527	Biopsy and autopsy type 2 predominance fiber percentage value	Percentage of Type 2 predominance fiber present	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental-Highly Recommended	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Supplemental-Highly Recommended	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
C12317	Pulmonary function forced vital capacity early termination indicator	Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.