CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1842
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04506 ECG right ventricular hypertrophy status

Status of right ventricular hypertrophy on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12298 Pulmonary function test not done reason

Reason the pulmonary function test was attempted but not completed

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04514 ECG T wave abnormality indicator

Indicator whether the T wave appears abnormal on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12944 Variant mutational analysis performed indicator

Whether the variant or mutational analysis was performed on the participant/subject

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12287 Tissue specimen section count

Count of the number of sections from the tissue specimen that were taken and evaluated

Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12317 Pulmonary function forced vital capacity early termination indicator

Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12527 Biopsy and autopsy type 2 predominance fiber percentage value

Percentage of Type 2 predominance fiber present

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58651 Tissue specimen section count unknown indicator

Indicator that the count of tissue speciments is unknown

Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12301 Pulmonary Function Test seat position type

The seated position of the participant/subject during the assessment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04515 ECG ventricular arrhythmia type

Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12277 Biospecimen fragment collect count

Count of fragments collected in the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12318 Pulmonary function forced vital capacity peak flow indicator

Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12528 Biopsy and autopsy nemaline rods restricted to one fiber text

Nemaline rods restricted to one fiber text

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12310 Pulmonary function complete exhalation indicator

Whether the complete amount of air was exhaled from the participant/subject

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04508 ECG previous myocardial infarction status

Status of patterns of previous myocardial infarction apparent on the electrocardiogram (EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12303 Pulmonary function test equipment manufacturer name

Name of manufacturer of the pulmonary function test equipment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1 - 25 of 1842

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.