CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 1106
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12200 Gastrointestinal therapy feed tube type

Type of tube through which the participant/subject receives therapeutic tube feedings

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12436 Polysomnography blood oxygen saturation mean REM sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) during rapid eye movement (REM) sleep from the polysomnography being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12245 Symptom presentation type

Symptoms participant/ subject shows at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12906 Echocardiogram left ventricle non-compaction status

Status of non-compaction in the left ventricle on the echocardiogram

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12504 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site

Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12612 Initial symptom age value

The age at which the participant/subject first noted a neuromuscular symptom

Supplemental Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12333 Respiratory manual percussion use daily frequency

Frequency of use of manual percussion therapy on a daily basis

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12209 Gastrointestinal therapy feed schedule table number

Number of the table used to describe the participant/subject's feeding schedule

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10682 Imaging anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10589 Imaging shot count

The number of shots used in the imaging echo-planner acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12444 Polysomnography blood oxygen saturation drop hour total sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during total sleep time

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18847 Respiratory support device other text

the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12255 Biopsy and autopsy central nuclei estimated fibers percent value

Estimated percent of fibers in central nuclei

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12914 Echocardiogram result status

Status of the global results of the echocardiogram

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18610 Imaging in plane resolution axis 2 measurement

Axis 2 of in-plane spatial resolution used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12184 Dual X-ray absorptiometry proximal femur T score

Dual X-ray absorptiometry (DEXA) proximal femur T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12863 Echocardiogram left atrium view type

Type of view of the left atrium on the echocardiogram

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12220 Gastrointestinal therapy estimate caloric intake value

Value of the participant/subject's caloric intake received through formula

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12468 Imaging brain magnetic resonance imaging perform multiple count type

Type of count for the number of brain magnetic resonance imaging (MRI) sessions performed on the participant

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10683 Imaging T2 weighted spin-echo acquired indicator

Indicator as to whether or not T2-weighted spin-echo data acquired for spatially registering DWI data and performing spatial distortion (B0) correction

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 176 - 200 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.