CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1843
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness.

 Supplemental Prenatal and Perinatal History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12183 Dual X-ray absorptiometry proximal femur raw score

Dual X-ray absorptiometry (DEXA) proximal femur raw score result value

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12862 Echocardiogram left atrial enlargement status

Status of left atrial enlargement on the echocardiogram.

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12218 Gastrointestinal therapy formula name

Name of the formula taken by the participant/subject for non-continuous feeding

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12468 Imaging magnetic resonance imaging performed multiple count

The count representing of the number of Magnetic Resonance Imaging (MRI) sessions performed on the participant/subject

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10682 Imaging anatomic site

Type of body part or anatomy scanned in the imaging study

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12451 Polysomnography end tidal carbon dioxide REM sleep value

Value, as a percent, of the selected end-tidal CO2 (ETCO2) measurement during rapid eye movement (REM) sleep

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C51215 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Verbal memory index working memory index difference prevalence scale

Prevalence scale of the difference between the verbal memory index and the working memory index, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

 Supplemental Social Status False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental Vital Signs False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C51050 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Sound symbol retention raw score

Raw score for sound symbol retention, being the difference between the sound symbol trial 4 raw score and the sound symbol delay recall raw score, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52803 Woodcock Johnson III (WJ-III) ? Editing score

Score from the editing test as part of the Woodcock Johnson III (WJ-III) tests of achievement.

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C50885 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Design memory scoring criteria card 2 item number

Number of Design Memory Response Form Card 2 scoring criteria item selected, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C51175 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Core subtest scaled score total value

Total value of scaled scores for all Core subtests, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12270 Biopsy and autopsy antibodies used name

List the names of antibodies used

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).

 Supplemental EuroQoL-5 Dimension Questionnaire (EQ-5D) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C51010 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Visual memory index standard score

Index standard score for the total value of the scaled scores of the visual memory subtests, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

 Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52753 Woodcock Johnson III (WJ-III) ? Writing fluency time duration

Duration time of writing fluency as part of the Woodcock Johnson III (WJ-III) tests of achievement.

 Supplemental Woodcock-Johnson III Test of Cognitive Abilities True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18878 Echocardiogram result other text

The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C53946 California Verbal Learning Test Childrens version (CVLT-C) - Total intrusions for all free recall trials count

Total count of intrusions for all free recall trials, as part of California Verbal Learning Test Children's version (CVLT-C). Also used as a raw score.

 Supplemental California Verbal Learning Test - Children (CVLT-C) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18719 Imaging slice orientation other text

The free-text field related to 'Imaging slice orientation type' specifying other text. The slice orientation used in imaging acquisition

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08500 36-item Short Form Health Survey (SF-36) - General health score

Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12191 Dual X-ray absorptiometry whole body bone mineral content value

The amount of bone mineral content (BMC) for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12870 Echocardiogram pulmonic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 151 - 175 of 1843

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.