CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

 Supplemental Physical Examination False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12790 Gene exon first deleted duplicated name

Name of the first exon deleted or duplicated

 Supplemental Mutation Analysis False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12496 Imaging cerebellum normality status

Status related to whether the cerebellum appears normal or abnormal in the imaging study

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04802 Death date and time

Date (and time, if known) of participant's death

 Supplemental Death Report False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18715 Imaging radio frequency coil other text

The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10728 Echocardiogram left ventricular internal dimension end systole measurement

Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12325 Respiratory mechanical in-exsufflator exhale duration

Value of the exhale time setting for the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12200 Gastrointestinal therapy feed tube type

Type of tube through which the participant/subject receives therapeutic tube feedings

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12436 Polysomnography blood oxygen saturation mean REM sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) during rapid eye movement (REM) sleep from the polysomnography being reported

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12245 Symptom presentation type

Symptoms participant/ subject shows at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12906 Echocardiogram left ventricle non-compaction status

Status of non-compaction in the left ventricle on the echocardiogram

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12504 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site

Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12612 Initial symptom age value

The age at which the participant/subject first noted a neuromuscular symptom

 Supplemental Medical History of NMD False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

 Supplemental Vital Signs False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12333 Respiratory manual percussion use daily frequency

Frequency of use of manual percussion therapy on a daily basis

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12209 Gastrointestinal therapy feed schedule table number

Number of the table used to describe the participant/subject's feeding schedule

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10682 Imaging anatomic site

Anatomic site of body part or anatomy scanned in the imaging study

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10589 Imaging shot count

The number of shots used in the imaging echo-planner acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12444 Polysomnography blood oxygen saturation drop hour total sleep count

Count per hour of sleep of drops of 3% or more from baseline blood oxygen saturation (SpO2) during total sleep time

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18847 Respiratory support device other text

the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12255 Biopsy and autopsy central nuclei estimated fibers percent value

Estimated percent of fibers in central nuclei

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 126 - 150 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.