CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 126 - 150 of 1843
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08500 36-item Short Form Health Survey (SF-36) - General health score

Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12191 Dual X-ray absorptiometry whole body bone mineral content value

The amount of bone mineral content (BMC) for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12870 Echocardiogram pulmonic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12534 Gastrointestinal therapy formula grade

Grade, in cal/oz, of formula taken by the participant/subject if receiving continuous feeding

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12480 Imaging cortex-pachygyria thickness measurement

The measurement of cortex thickness, in , of the cortex

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12459 Polysomnography transcutaneous carbon dioxide awake value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during wakefulness

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12412 Pulmonary gas exchange end tidal transcutaneous carbon dioxide value

The value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01702 Pregnancy test date and time

The date (and time if applicable and known) when the pregnancy test was performed

Supplemental Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52813 Woodcock Johnson III (WJ-III) ? Story recall?delayed test date

The date when the story recall–delayed test was performed as part of the Woodcock Johnson III (WJ-III) tests of achievement.

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Neuromuscular Diseases Neuromuscular Diseases (NMD)
C50893 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Design memory scoring criteria card 4 total score

Total score for presence of scoring criteria items on Design Memory Response Form Card 4, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C51183 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story recognition total scaled score

Scaled score for the Story Memory Recognition Total of the Story Memory Recognition subtest, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12518 Endomysial fibrosis severity status

Severity of the Endomysial fibrosis muscle diagnostic abnormalities

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C51671 Grade status

The status of the subject's grade level in school, if applicable.

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C51018 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Verbal memory index visual memory index difference significance category

Category of significance level for the difference between the verbal memory index and the visual memory index, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52769 Woodcock Johnson III (WJ-III) ? Writing samples point count

Count of points for the writing sample responses from the test subject as part of the Woodcock Johnson III (WJ-III) tests of achievement.

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10778 Electrophysiology motor unit number estimation muscle studied name

Name of the muscle studied using the MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C50853 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story A scoring criteria item number

Number of the Story A scoring criteria item being scored, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C51143 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Story memory recognition 9 adult total score

Total score of story memory recognition for participants 9 to adult, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18859 Imaging cerebellum abnormality other text

The free-text field related to 'Imaging cerebellum abnormality type' specifying other text. The type of abnormality in the cerebellum on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08509 36-item Short Form Health Survey (SF-36) - Health limited walking miles score

Score of surveyee-reported limited walking more than one mile due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C50978 Wide Range Assessment of Memory and Learning Second Edition (WRAML2) - Verbal working memory level A item grouping score

Score for the selected grouping for the selected Verbal Working Memory - Level A Item, as part of the Wide Range Assessment of Memory and Learning Second Edition (WRAML2)

Supplemental Wide Range Assessment of Memory and Learning, Second Edition (WRAML-2) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10864 Dynamometry hand held muscle test performed indicator

Indicator of whether the hand held dynamometry testing was done.

Supplemental Hand Held Dynamometry Neuromuscular Diseases Neuromuscular Diseases (NMD)
C52672 Woodcock Johnson III (WJ-III) ? Standardized test procedures modifications indicator

Indicator of any modifications made to standardized test procedures during test administration as part of the Woodcock Johnson III (WJ-III) tests of achievement.

Supplemental Woodcock-Johnson III Test of Cognitive Abilities Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17908 Tissue specimen intraepidermal nerve fiber statistics other report text

Text description of any other intraepidermal nerve fiber (IENF) statistics that were reported for the tissue specimen by the pathology laboratory

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 126 - 150 of 1843

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.