CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1051 - 1075 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

Supplemental-Highly Recommended Mutation Analysis Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04501 ECG assessment date and time

Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12317 Pulmonary function forced vital capacity early termination indicator

Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12301 Pulmonary Function Test seat position type

The seated position of the participant/subject during the assessment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12277 Biospecimen fragment collect count

Count of fragments collected in the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12249 Biopsy and Autopsy histochemical stains diagnostic abnormalities present type

The diagnostic abnormalities present on the histochenmical stains for the participant's/subject's tissue

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04502 ECG global result type

Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12310 Pulmonary function complete exhalation indicator

Whether the complete amount of air was exhaled from the participant/subject

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12318 Pulmonary function forced vital capacity peak flow indicator

Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12303 Pulmonary function test equipment manufacturer name

Name of manufacturer of the pulmonary function test equipment

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04511 ECG QT interval

Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12278 Specimen histochemical stain diagnostic abnormality type

Types of diagnostic abnormalities noted on the histochemical stains performed on the tissue specimen

Supplemental-Highly Recommended Peripheral Nerves - Biopsies and Autopsies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04503 ECG heart rate

Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Supplemental-Highly Recommended Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12311 Pulmonary function index of lung function type

The different functions of the lungs tested during pulmonary function test (PFT)

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12516 Pulmonary function lung function measurement

Numeric result of index function of the lungs tested

Supplemental-Highly Recommended Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01706 Lab test result text

Result of the laboratory test

Supplemental-Highly Recommended Laboratory Tests and Tracking Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04512 ECG QTc interval

Interval in milliseconds (msec) as corrected for the period from the start of the Q wave to the end of the T wave (QTc interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental-Highly Recommended Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental-Highly Recommended Fat Aspirate Tissue Specimens Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1051 - 1075 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.