CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1026 - 1050 of 1106

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1060-C12908	C12908	Echocardiogram intracardiac find type	Type of intracardiac findings observed by echocardiography	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C12506	C12506	Imaging eye abnormality type	The type of eye abnormalities	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1091-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1054-C12178	C12178	Dual X-ray absorptiometry hip T score	Dual X-ray absorptiometry (DEXA) Hip T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1060-C10744	C10744	Echocardiogram left ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension	Supplemental	Echocardiogram	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1039-C12212	C12212	Gastrointestinal therapy feed duration	Duration of feedings received by the participant/subject	Supplemental	Gastrointestinal Therapies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C10591	C10591	Imaging phase encode direction text	Text description of the phase encode direction used in imaging technique acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C12808	C12808	Gene sequenced with no variant mutation indicator	Indicator of whether there are additional genes sequenced with no variants or mutations detected	Supplemental-Highly Recommended	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1035-C11100	C11100	Pulmonary function test position type	Participant's/subject's position for the pulmonary function assessment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1035-C12315	C12315	Pulmonary function forced vital capacity leak indicator	Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1035-C18833	C18833	Pulmonary function test not done other text	The free-text field related to 'Pulmonary function test not done reason' specifying other text. Reason the pulmonary function test was attempted but not completed	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12249	C12249	Biopsy and Autopsy histochemical stains diagnostic abnormalities present type	The diagnostic abnormalities present on the histochenmical stains for the participant's/subject's tissue	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F2136-C04502	C04502	ECG global result type	Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1992-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental-Highly Recommended	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1035-C11101	C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F2136-C04511	C04511	ECG QT interval	Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1035-C12316	C12316	Pulmonary function forced vital capacity large value range indicator	Whether the two largest values of forced vital capacity (FVC) are within 10% of each other	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F2136-C04503	C04503	ECG heart rate	Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)	Supplemental-Highly Recommended	Electrocardiogram (ECG)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C12944	C12944	Variant mutational analysis performed indicator	Indicator of whether the variant or mutational analysis was performed on the participant	Supplemental-Highly Recommended	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C18873	C18873	Gene mutation detected digenic result specify	The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

Displaying 1026 - 1050 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.