CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12606 Health insurance private group type

Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

 Supplemental Social Status False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12348 Respiratory high frequency chest wall oscillation system vest type

Type of vest used

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12231 Laboratory name

Name of laboratory where assessment was performed

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12895 Echocardiogram right ventricular internal dimension end systole measurement

Measurement of right ventricular end - systolic internal dimension (RVIDs) obtained by echocardiography

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12293 Tissue specimen intraepidermal nerve fiber density value

Value of the intraepidermal nerve fiber density in the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17883 Gastrointestinal therapy water flush status

The status of whether water was used to flush the participant/subject's feeding tube, if applicable

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12493 Imaging brainstem abnormality type

The type of abnormality in the brainstem on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C21668 ICD-10-CM code

Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

 Supplemental Surgical History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10725 Echocardiogram left ventricular posterior wall thickness end diastole measurement

Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12461 Polysomnography heart rate measurement grade

Grade of the heart rate (HR) measurements being reported

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12241 Biochemical or genetic test name

Name of the biochemical or genetic test as performed on the specimen

 Supplemental Muscle Biopsy and Autopsy Tissue False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12903 Echocardiogram right ventricle end systolic volume index measurement

Measurement calculated from end systolic volume over body surface area for the right ventricle obtained by echocardiography

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18831 Tissue specimen section quantify other text

The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12501 Imaging internal capsule type indicator

The condition of the internal capsule

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08006 Symptoms first appear date and time

Date (and time if applicable and known) the symptoms for the disease or disorder first appeared as confirmed by the participant's/subject's medical history obtained by a physician

 Supplemental Medical History of NMD False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10735 Echocardiogram left ventricular hypertrophy status

Status of left ventricular hypertrophy on the echocardiogram

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

 Supplemental Respiratory Interventions False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12422 Pulmonary gas exchange end tidal transcutaneous average carbon dioxide value

The average value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12429 Polysomnography sleep latency duration

Duration required by the participant/subject to transition from full wakefulness to sleep

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 101 - 125 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.