CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C12756	C12756	Electrophysiology blood pressure response Valsalva phase II early result	The blood pressure response to valsalva maneuver during Phase II early	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C12690	C12690	Gene name	Name of the gene analyzed	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C17879	C17879	Polysomnography start time clock type	Type of clock used to record the time at which the sleep study began	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C10589	C10589	Imaging shot count	The number of shots used in the imaging echo-planner acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C17901	C17901	Elevated creatine kinase Indicator	Indicator of whether participant/subject experienced elevated creatine kinase levels	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12713	C12713	Electrophysiology blink reflex test ipsilateral R2 latency value	Duration of ipsilateral R2 latency in the blink reflex test	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1038-C12420	C12420	Pulmonary gas exchange oxygen saturation less 90 percent value	The percent of time the participant/subject's oxygen saturation level (SpO2) is less then 90 percent while the participant/subject is sleeping	Supplemental	Measures of Gas Exchange	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12428	C12428	Polysomnography study end time	Time at which the sleep study ended	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C18813	C18813	Imaging lesion found other text	The free-text field related to 'Imaging lesion found type' specifying other text. Type of lesions found in the imaging study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1059-C10877	C10877	Holter exam heart block episode type	Type of episode(s) of heart block assessed during the Holter examination	Supplemental	Holter Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1057-C12482	C12482	Imaging cortex lissencephaly (LIS type 1) thickness measurement	The measurement of cortex thickness, in , of the lissencephaly (LIS type 1) site	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12237	C12237	Specimen overall interpretation status	Status of the overall assessment of the specimen	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1058-C10959	C10959	Spectroscopy spectral bandwidth value	Spectral bandwidth, in Hertz per pixel, used for both metabolite and water signal reference data acquisitions	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1056-C17929	C17929	Cardiac MRI overall impression text	Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1054-C12184	C12184	Dual X-ray absorptiometry proximal femur T score	Dual X-ray absorptiometry (DEXA) proximal femur T score result value	Supplemental	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1997-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Examination	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12764	C12764	Electrophysiology tilt study blood pressure change result	Blood Pressure changes experienced from a tilt test	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1055-C12539	C12539	Imaging fluid attenuated inversion recovery sequence indicator	Indicator of whether FLAIR (fluid attenuated inversion recovery) sequence was used to remove the effects of fluid from the resulting images	Supplemental	Magnetic Resonance Imaging (MRI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1046-C12789	C12789	Gene deletions duplications limits clearly defined indicator	Indicator of whether the limits of deletions and duplications are defined	Supplemental	Mutation Analysis	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1037-C12325	C12325	Respiratory mechanical in-exsufflator exhale duration	Value of the exhale time setting for the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1053-C10683	C10683	Imaging T2 weighted spin-echo acquired indicator	Indicator as to whether or not T2-weighted spin-echo data acquired for spatially registering DWI data and performing spatial distortion (B0) correction	Supplemental	Diffusion Tensor Imaging (DTI)	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1989-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1062-C12721	C12721	Electrophysiology repetitive nerve activation technique type	Indicator of the activation technique used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.