CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 351 - 375 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10931 Imaging quality technically satisfactory status

Status related to whether the quality of the images was technically satisfactory

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12307 Ulna length measure tool name

Instrument used to measure ulna length

Supplemental Pulmonary Function Testing Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18851 Respiratory support ventilation mode other text

The free-text field related to 'Respiratory support ventilation mode type' specifying other text. Type of mode of ventilation for the support ventilation device used

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10869 Dynamometry hand held muscle test result

The results of the trial performed by the participant/subject on the hand held dynamometer

Supplemental Hand Held Dynamometry Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12259 Biopsy and autopsy inflammation type

Perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17964 Cardiovascular pulmonic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

Supplemental Prenatal and Perinatal History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12456 Polysomnography transcutaneous carbon dioxide total sleep value

Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during total sleep

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12188 Dual X-ray absorptiometry distal femur Z score

Dual X-ray absorptiometry (DEXA) distal femur Z score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12867 Echocardiogram left ventricular trabeculation status

Status of trabeculations in the left ventricle on the echocardiogram

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12224 Gastrointestinal therapy feed schedule start date

Date on which the feeding schedule for gastrointestinal therapy began

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12476 Imaging other incidental finding indicator

Indicator of whether other incidental findings are found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10842 Imaging analysis software name

Name of the software used for data processing or analysis of the imaging study

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12409 Pulmonary gas exchange measurement type

The type of gas exchange measurement used on participant/subject

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12267 Biopsy and autopsy liver biopsy autopsy results

The results of the liver biopsy

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12826 ECG arrhythmia ventricular morphology type

Type of morphology of any ventricular arrhythmia apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18855 Imaging other cortical abnormality other text

The free-text field related to 'Imaging other cortical abnormality type' specifying other text. The type of other cortical abnormality

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12464 Polysomnography heart rate non-REM sleep value

Value, in beats per minute, of the selected heart rate (HR) measurement during non-rapid eye movement (REM) sleep

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12196 Dual X-ray absorptiometry right leg lean value

Right leg lean muscle mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12875 Echocardiogram mitral valve prolapse indicator

Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17887 Gastrointestinal therapy continuous feed end time value

The value for the time of day that the participant/subject's continuous feeding is normally ended

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 351 - 375 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.