CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12870 Echocardiogram pulmonic valve stenosis degree status

Status of the degree of pulmonic valve stenosis as assessed by echocardiography

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12354 Respiratory intrapulmonary percussive ventilation or MetaNeb frequency

Frequency of intrapulmonary percussive ventilation or MetaNeb use

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12534 Gastrointestinal therapy formula grade

Grade, in cal/oz, of formula taken by the participant/subject if receiving continuous feeding

Supplemental Gastrointestinal Therapies Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12479 Imaging cortex-pachygyria site type

The anatomical site(s) of the cortex-pachygyria

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12412 Pulmonary gas exchange end tidal transcutaneous carbon dioxide value

The value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

Supplemental Measures of Gas Exchange Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12270 Biopsy and autopsy antibodies used name

List the names of antibodies used

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10778 Electrophysiology motor unit number estimation muscle studied name

Name of the muscle studied using the MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12829 ECG atrial enlargement left status

Status of left atrial enlargement present or absent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12404 Respiratory oxygen use schedule daily hours value

Value of the number of hours of supplemental oxygen use per day

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18858 Imaging pons abnormality other text

The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12513 Dual X-ray absorptiometry distal forearm raw score

The score for the dual X-ray absorptiometry (DEXA) of the distal forearm

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08020 Surgery reason indication type

Reason participant/subject is in need of surgery

Supplemental Surgical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18880 Cardiovascular Holter exam atrial dysrhythmia type other text

The free-text field related to 'Cardiovascular Holter exam atrial dysrhythmia type', specifying other text. Type of atrial dysrhythmia detected during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Supplemental Brain Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00226 Health insurance type

Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12737 Needle electromyography interference pattern analysis technique name

The interference pattern technique used for analysis measure during needle electromyography

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12324 Respiratory mechanical in-exsufflator inhale duration

Value of the inhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17948 Scanner magnetic field other strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported, if unlisted

Supplemental Magnetic Resonance Spectroscopy (MRS) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12517 Fatty replacement severity status

Severity of the Fatty replacement muscle diagnostic abnormalities

Supplemental Muscle Biopsy and Autopsy Tissue Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

Supplemental Magnetic Resonance Imaging (MRI) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

Supplemental Electrophysiology Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12435 Polysomnography blood oxygen saturation mean total sleep measurement

Measurement, in percent, of the mean blood oxygen saturation (Sp02) for total sleep from the polysomnography being reported

Supplemental Polysomnography Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 276 - 300 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.