CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1106
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

 Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

 Core Medical History of NMD False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Core Social Status False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Exploratory Grip Strength False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Exploratory Grip Strength False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10171 Trial number

The number representing the sequence for any repeated measure test or assessment when it is performed multiple times

 Exploratory Grip Strength False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

 Exploratory Grip Strength False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

 Exploratory Grip Strength False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11131 Body mass index value

Value of the participant's body mass index, calculated from height and weight

 Exploratory Vital Signs False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

 Exploratory Grip Strength False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

 Exploratory Grip Strength False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

 Exploratory Grip Strength False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12197 Dual X-ray absorptiometry left leg lean value

Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)

 Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12887 Echocardiogram left ventricular concentric remodel status

Status of concentric remodeling in the left ventricle on the echocardiogram

 Supplemental Echocardiogram False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18826 Gastrointestinal therapy feed tube other text

The free-text field related to 'Gastrointestinal therapy feed tube type' specifying other text. Type of tube through which the participant/subject receives therapeutic tube feedings

 Supplemental Gastrointestinal Therapies False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

 Supplemental Diffusion Tensor Imaging (DTI) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12465 Polysomnography heart rate awake value

Value, in beats per minute, of the selected heart rate (HR) measurement during wakefulness

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12418 Pulmonary blood gas base excess value

The numeric value for the amount of base excess or deficit in the blood

 Supplemental Measures of Gas Exchange False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12425 Polysomnography study date

Date on which the polysomnography (sleep study) being reported was performed

 Supplemental Polysomnography False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12693 Electrophysiology H-reflex nerve segment name

The nerve segment used for the H-reflex test

 Supplemental Electrophysiology False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12835 ECG bundle branch block type

Type of any complete or incomplete bundle branch block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

 Supplemental Magnetic Resonance Spectroscopy (MRS) False Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 26 - 50 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.