CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1842
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

Core Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18253 Clinical trial previous participation indicator

Indicator of whether the participant/subject participated in any prior clinical trials

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event

Core Family History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Core Family History Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant/subject's medical history was taken

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 1 - 25 of 1842

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.