CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1 - 25 of 1106

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1033-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1034-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject	Core	Family History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C12233	C12233	Preservation technique used type	Type of preservation technique used to preserve the specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C10970	C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1033-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1090-C18253	C18253	Clinical trial previous participation indicator	Indicator of whether the participant/subject participated in any prior clinical trials	Core	Medical History of NMD	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1034-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event	Core	Family History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C10972	C10972	Manual muscle testing position type	The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Core	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1034-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject	Core	Family History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1031-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C10974	C10974	Manual muscle testing muscle score	The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1090-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant/subject's medical history was taken	Core	Medical History of NMD	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1016-C10975	C10975	Manual muscle testing anatomic site	The anatomic site of the muscle assessed during the performance of the manual muscle testing	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1032-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Core	Social Status	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

Displaying 1 - 25 of 1106

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.