CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 976 - 1000 of 1106
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11139 Country of origin maternal ISO code

The ISO 3166-1 alpha-2 code for the participant's mother's country of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18253 Clinical trial previous participation indicator

Indicator of whether the participant/subject participated in any prior clinical trials

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12605 Caregiver primary type

Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17955 Cardiovascular ventricular dysrhythmia episode total count

Count of the total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17956 Cardiovascular ventricular dysrhythmia episode duration

Duration, in seconds, of a specific ventricular dysrhythmia episode recorded during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17962 Cardiovascular tricuspid valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17964 Cardiovascular pulmonic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17963 Cardiovascular mitral valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve

Supplemental Echocardiogram Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18879 Cardiovascular Holter predominant heart rhythm type other text

The free-text field related to 'Cardiovascular Holter predominant heart rhythm type', specifying other text. Type of heart rhythm the participant exhibited the majority of the time during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12917 Cardiovascular Holter predominant heart rhythm type

Type of heart rhythm the participant exhibited the majority of the time during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18882 Cardiovascular Holter exam ventricular dysrhythmia type other text

The free-text field related to 'Cardiovascular Holter exam ventricular dysrhythmia type', specifying other text. Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12930 Cardiovascular Holter exam ventricular dysrhythmia type

Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12935 Cardiovascular Holter exam ventricular contraction morphology type

Type of morphology of the ventricular contraction

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12933 Cardiovascular Holter exam ventricular contraction count type

Type of ventricular contraction for which the total number of occurrences is recorded

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12934 Cardiovascular Holter exam ventricular contraction count

Number of occurrences of the specific type of ventricular contraction

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17960 Cardiovascular Holter exam tachycardia episode total count

Count of the total number of tachycardia episodes during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12936 Cardiovascular Holter exam symptomatic arrhythmia indicator

Indicator of whether the participant was symptomatic during the arrhythmias detected during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12916 Cardiovascular Holter exam stop date time

Date (and time, if applicable and known) the Holter examination stopped

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12931 Cardiovascular Holter exam premature ventricular contraction percentage value

Value of the percent of premature ventricular contractions the participant experienced during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17957 Cardiovascular Holter exam premature ventricular contraction count

Count of premature ventricular contractions per 24 hours

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12926 Cardiovascular Holter exam premature atrial contraction percentage value

Value of percent of premature atrial contractions the participant experienced during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12918 Cardiovascular Holter exam maximum heart rate duration

Duration of maximum heart rate recorded during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 976 - 1000 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.