CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1992-C01714	C01714	Pregnancy test not applicable reason	Reason that performance of a pregnancy test was not applicable to the participant/subject	Supplemental	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1992-C01702	C01702	Pregnancy test date and time	The date (and time if applicable and known) when the pregnancy test was performed	Supplemental	Laboratory Tests and Tracking	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1091-C00003	C00003	Postnatal age value	Time elapsed after birth of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1999-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1050-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1048-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Fat Aspirate Tissue Specimens	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1985-C12227	C12227	Postmortem interval for autopsy specimen value	Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1091-C00002	C00002	Post conceptional age value	Gestational age plus postnatal age of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12456	C12456	Polysomnography transcutaneous carbon dioxide total sleep value	Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during total sleep	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12457	C12457	Polysomnography transcutaneous carbon dioxide REM sleep value	Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during rapid eye movement (REM) sleep	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12458	C12458	Polysomnography transcutaneous carbon dioxide non-REM sleep value	Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during non-rapid eye movement (REM) sleep	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12455	C12455	Polysomnography transcutaneous carbon dioxide measurement grade	Grade of the transcutaneous CO2 (TcCO2) measurements being reported	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12454	C12454	Polysomnography transcutaneous carbon dioxide measured indicator	Indicator of whether transcutaneous CO2 (TcCO2) was measured in the polysomnography being reported	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12459	C12459	Polysomnography transcutaneous carbon dioxide awake value	Value, as a percent, of the selected transcutaneous CO2 (TcCO2) measurement during wakefulness	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12426	C12426	Polysomnography study type	Type of polysomnography (sleep study) that is being reported	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12427	C12427	Polysomnography study start time	Time at which the sleep study began	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12428	C12428	Polysomnography study end time	Time at which the sleep study ended	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12425	C12425	Polysomnography study date	Date on which the polysomnography (sleep study) being reported was performed	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C17879	C17879	Polysomnography start time clock type	Type of clock used to record the time at which the sleep study began	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12430	C12430	Polysomnography sleep total duration	Duration for which the participant/subject was asleep during the sleep study	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12429	C12429	Polysomnography sleep latency duration	Duration required by the participant/subject to transition from full wakefulness to sleep	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12440	C12440	Polysomnography percent sleep time total percent blood oxygen saturation value	Value representing the amount of total sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12441	C12441	Polysomnography percent sleep time REM percent blood oxygen saturation value	Value representing the amount of rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12442	C12442	Polysomnography percent sleep time non-REM percent blood oxygen saturation value	Value representing the amount of non-rapid eye movement (REM) sleep, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)
F1036-C12443	C12443	Polysomnography percent awake time percent blood oxygen saturation value	Value representing the amount of waking time, as a percentage of total sleep time, in which blood oxygen saturation (SpO2) approached the selected level	Supplemental	Polysomnography	False	Neuromuscular Diseases	Neuromuscular Diseases (NMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.