CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1106
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17955 Cardiovascular ventricular dysrhythmia episode total number

Total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination

Supplemental Holter Examination Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12605 Caregiver primary type

Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18253 Clinical trial previous participation indicator

Indicator of whether the participant/subject participated in any prior clinical trials

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11139 Country of origin maternal ISO code

The ISO 3166-1 alpha-2 code for the participant's mother's country of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C11136 Country origin paternal name

Father's country or countries of origin

Supplemental Demographics Neuromuscular Diseases Neuromuscular Diseases (NMD)
C21665 Death cause ICD-10-CM code

ICD-10-CM code that describes the cause of participant/subject's death

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12610 Death location type

Type of location where the participant/subject died

Supplemental Death Report Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Core Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C10501 Diagnosis initial age value

Age of the participant/subject when initially diagnosed with disease/disorder

Supplemental Medical History of NMD Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12602 Discharge post acute location

Location, post-acute discharge, at which participant/subject is currently staying

Supplemental Social Status Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12176 Dual energy X-ray absorptiometry participant age value

Age of the participant/subject when the Dual X-ray absorptiometry (DEXA) was done

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12193 Dual X-ray absorptiometry appendicular lean soft tissue value

The amount of appendicular lean soft tissue (ALST) mass for dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C17921 Dual X-ray absorptiometry current corticosteroid use indicator

Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12186 Dual X-ray absorptiometry distal femur raw score

Dual X-ray absorptiometry (DEXA) distal femur raw score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12187 Dual X-ray absorptiometry distal femur T score

Dual X-ray absorptiometry (DEXA) distal femur T score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12188 Dual X-ray absorptiometry distal femur Z score

Dual X-ray absorptiometry (DEXA) distal femur Z score result value

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12515 Dual X-ray absorptiometry distal forearm Z score

The Z score the for dual X-ray absorptiometry (DEXA) of the distal forearm

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
C12513 Dual X-ray absorptiometry distal forearm raw score

The score for the dual X-ray absorptiometry (DEXA) of the distal forearm

Supplemental Dual-Energy X-Ray Absorptiometry (DEXA) Neuromuscular Diseases Neuromuscular Diseases (NMD)
Displaying 126 - 150 of 1106

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.