CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 4251 - 4275 of 4296

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2916-C20782	C20782	Patient-Reported Outcome Measurement Information System (PROMIS) - Afraid assessment past week scale	The scale which represents how often the participant felt terrified in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20782	C20782	Patient-Reported Outcome Measurement Information System (PROMIS) - Afraid assessment past week scale	The scale which represents how often the participant felt terrified in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20783	C20783	Patient-Reported Outcome Measurement Information System (PROMIS) - Other people reaction worry assessment past week scale	The scale which represents how often the participant was worried about other people's reactions to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20783	C20783	Patient-Reported Outcome Measurement Information System (PROMIS) - Other people reaction worry assessment past week scale	The scale which represents how often the participant was worried about other people's reactions to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20784	C20784	Patient-Reported Outcome Measurement Information System (PROMIS) - Anxiety concentration difficulty past week scale	The scale which represents how often the participant found it hard to focus on anything other than anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20784	C20784	Patient-Reported Outcome Measurement Information System (PROMIS) - Anxiety concentration difficulty past week scale	The scale which represents how often the participant found it hard to focus on anything other than anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20785	C20785	Quality of Life - Overwhelm worry assessment past week scale	The scale which represents how often the participant's worries overwhelmed him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20785	C20785	Quality of Life - Overwhelm worry assessment past week scale	The scale which represents how often the participant's worries overwhelmed him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20786	C20786	Patient-Reported Outcome Measurement Information System (PROMIS) - Muscle twitch tremble assessment past week scale	The scale which represents how often the participant had twitching or trembling muscles in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20786	C20786	Patient-Reported Outcome Measurement Information System (PROMIS) - Muscle twitch tremble assessment past week scale	The scale which represents how often the participant had twitching or trembling muscles in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20787	C20787	Quality of Life - Nervousness assessment past week scale	The scale which represents how often the participant felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20787	C20787	Quality of Life - Nervousness assessment past week scale	The scale which represents how often the participant felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20788	C20788	Patient-Reported Outcome Measurement Information System (PROMIS) - Indecisiveness assessment past week scale	The scale which represents how often the participant felt indecisive in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20788	C20788	Patient-Reported Outcome Measurement Information System (PROMIS) - Indecisiveness assessment past week scale	The scale which represents how often the participant felt indecisive in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20789	C20789	Quality of Life - Worry many situation assessment past week scale	The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20789	C20789	Quality of Life - Worry many situation assessment past week scale	The scale which represents how often the many situations made the participant worry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20790	C20790	Quality of Life - Sleep difficultly assessment past week scale	The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20790	C20790	Quality of Life - Sleep difficultly assessment past week scale	The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20791	C20791	Quality of Life - Relax trouble assessment past week scale	The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20791	C20791	Quality of Life - Relax trouble assessment past week scale	The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20792	C20792	Quality of Life - Uneasiness assessment past week scale	The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20792	C20792	Quality of Life - Uneasiness assessment past week scale	The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20793	C20793	Quality of Life - Tension assessment past week scale	The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20793	C20793	Quality of Life - Tension assessment past week scale	The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20794	C20794	Quality of Life - Calmness difficulty assessment past week scale	The scale which represents how often the participant had difficulty calming down in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.