CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 4201 - 4225 of 4296

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2915-C20847	C20847	Patient-Reported Outcome Measurement Information System (PROMIS) - Daytime activity difficulty poor sleep past week scale	The scale which represents how often the participant's daytime activities were disturbed by poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20847	C20847	Patient-Reported Outcome Measurement Information System (PROMIS) - Daytime activity difficulty poor sleep past week scale	The scale which represents how often the participant's daytime activities were disturbed by poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20847	C20847	Patient-Reported Outcome Measurement Information System (PROMIS) - Daytime activity difficulty poor sleep past week scale	The scale which represents how often the participant's daytime activities were disturbed by poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20848	C20848	Patient-Reported Outcome Measurement Information System (PROMIS) - Irritability poor sleep past week scale	The scale which represents how often the participant felt irritable because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20848	C20848	Patient-Reported Outcome Measurement Information System (PROMIS) - Irritability poor sleep past week scale	The scale which represents how often the participant felt irritable because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20848	C20848	Patient-Reported Outcome Measurement Information System (PROMIS) - Irritability poor sleep past week scale	The scale which represents how often the participant felt irritable because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20849	C20849	Patient-Reported Outcome Measurement Information System (PROMIS) - Emotional control difficulty poor sleep past week scale	The scale which represents how often the participant had a hard time controlling his emotions because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20849	C20849	Patient-Reported Outcome Measurement Information System (PROMIS) - Emotional control difficulty poor sleep past week scale	The scale which represents how often the participant had a hard time controlling his emotions because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20849	C20849	Patient-Reported Outcome Measurement Information System (PROMIS) - Emotional control difficulty poor sleep past week scale	The scale which represents how often the participant had a hard time controlling his emotions because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20850	C20850	Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale	The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20850	C20850	Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale	The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20850	C20850	Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale	The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20851	C20851	Patient-Reported Outcome Measurement Information System (PROMIS) - sleepy during daytime past week scale	The scale which represents how often the participant was sleepy during the daytime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2915-C20851	C20851	Patient-Reported Outcome Measurement Information System (PROMIS) - sleepy during daytime past week scale	The scale which represents how often the participant was sleepy during the daytime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20851	C20851	Patient-Reported Outcome Measurement Information System (PROMIS) - sleepy during daytime past week scale	The scale which represents how often the participant was sleepy during the daytime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20852	C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Comprehensive
F2915-C20852	C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Stroke
F2915-C20852	C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Related Impairment	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2916-C20740	C20740	Patient-Reported Outcome Measurement Information System (PROMIS) - Fear assessment past week scale	The scale which represents how often the participant felt fearful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20740	C20740	Patient-Reported Outcome Measurement Information System (PROMIS) - Fear assessment past week scale	The scale which represents how often the participant felt fearful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20762	C20762	Patient-Reported Outcome Measurement Information System (PROMIS) - Fright assessment past week scale	The scale which represents how often the participant felt frightened in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20762	C20762	Patient-Reported Outcome Measurement Information System (PROMIS) - Fright assessment past week scale	The scale which represents how often the participant felt frightened in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20764	C20764	Patient-Reported Outcome Measurement Information System (PROMIS) - Nervousness fear assessment past week scale	The scale which represents how often the participant was scared when he/she felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General
F2916-C20764	C20764	Patient-Reported Outcome Measurement Information System (PROMIS) - Nervousness fear assessment past week scale	The scale which represents how often the participant was scared when he/she felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2916-C20766	C20766	Quality of Life - Anxiousness assessment past week scale	The scale which represents how often the participant felt anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab General

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.