CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C21443	Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory delay percent correct percentage value	The delayed memory percent correct number on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21387	Immediate Post-Concussion Assessment Testing (ImPACT) - Exam type	Type of exam conducted, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C55282	Post Concussion Symptom Scale (PCSS) - Total score	The total score as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Comprehensive
C21438	Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory immediate hit count	The number of immediate hits on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21382	Immediate Post-Concussion Assessment Testing (ImPACT) - Substance alcohol abuse treatment administered indicator	Indicator of whether the subject has received treatment for substance or alcohol abuse, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21454	Immediate Post-Concussion Assessment Testing (ImPACT) - Color match total correct count	The number of total correct on the color match module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21435	Immediate Post-Concussion Assessment Testing (ImPACT) - Word memory delay correct distractor count	The number of delay correct distractors identified on the word memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21398	Immediate Post-Concussion Assessment Testing (ImPACT) - Visual motor speed Reliable Change Index (RCI) exceed indicator	Indicator of whether the subject's composite score in visual motor speed exceeded the Reliable Change Index (RCI), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21451	Immediate Post-Concussion Assessment Testing (ImPACT) - Symbol match visible average correct reaction time duration	The visible average reaction time total correct duration, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21395	Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory Reliable Change Index (RCI) exceeded indicator	Indicator of whether the subject's composite score in visual memory exceeded the Reliable Change Index (RCI), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C55262	Post Concussion Symptom Scale (PCSS) - Vomiting symptom score	The score for vomiting symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21446	Immediate Post-Concussion Assessment Testing (ImPACT) - X and O interference total correct count	The interference total correct on the X's and O's module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21390	Immediate Post-Concussion Assessment Testing (ImPACT) - Verbal memory composite score	Verbal memory composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21462	Immediate Post-Concussion Assessment Testing (ImPACT) - Three letter average count	The average number of counted items on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21443	Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory delay percent correct percentage value	The delayed memory percent correct number on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21406	Immediate Post-Concussion Assessment Testing (ImPACT) - Cognitive efficiency index score	Cognitive efficiency index score (CEI) is the subject's cognitive efficiency index score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21459	Immediate Post-Concussion Assessment Testing (ImPACT) - Three letters total letters correct count	The number of total correct letters on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21403	Immediate Post-Concussion Assessment Testing (ImPACT) - Impulse control composite percentage value	The percentile of the subject's impulse control composite score (if available), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C55270	Post Concussion Symptom Scale (PCSS) - Light sensitivity symptom score	The score for light sensitivity symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21454	Immediate Post-Concussion Assessment Testing (ImPACT) - Color match total correct count	The number of total correct on the color match module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21398	Immediate Post-Concussion Assessment Testing (ImPACT) - Visual motor speed Reliable Change Index (RCI) exceed indicator	Indicator of whether the subject's composite score in visual motor speed exceeded the Reliable Change Index (RCI), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21117	Subject name	Name of subject/participant	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Comprehensive
C21451	Immediate Post-Concussion Assessment Testing (ImPACT) - Symbol match visible average correct reaction time duration	The visible average reaction time total correct duration, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21414	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Falling asleep trouble score	The subject's current trouble falling asleep rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C00004	Birth country ISO code	Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.