CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53761 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 4 score

The score for Word Reading item 4, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C54281 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
C21482 Rey Auditory Verbal Learning Test (RAVLT) - Word correct recall indicator

The indicator of whether the word from List B was correctly recalled, as part of the Rey Auditory Verbal Learning Test (RAVLT)

NeuroRehab Supplemental-Highly Recommended Rey Auditory Verbal Learning Test (RAVLT) NeuroRehab NeuroRehab General
C53757 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 2 score

The score for Word Reading item 2, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C20556 TBI Quality of Life (TBI-QOL) - Ask help T-score

The T-Score related to ability to and comfortability with asking others for help, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C07181 The Galveston Orientation and Amnesia Test (GOAT) - building location score

Scored ability to accurately identify the building they are currently located, as part of the Galveston Orientation and Amnesia Test (GOAT)

NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) NeuroRehab NeuroRehab Comprehensive
C56318 NIH Toolbox Cognitive – List scoring working memory age 7 up raw score

The raw score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C52370 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Dizziness scale

Scale that rates the severity of how the subject now suffers from dizziness as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab TBI Comprehensive
C17380 Parkinson's Disease Quality of Life (PDQUALIF) - travel important scale

Rating scale for feeling that travel remains an important part of leisure activities as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C58483 Static upper extremity orthosis splint use anatomic site

Anatomic site of the static upper extremity orthosis/splints use

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C09300 Apathy Scale (AS) - Comment text

Comments about the subjects apathetic rating, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C21654 Back brace indicator

Indicator of whether the participant/subject wears a type of orthosis for the spine

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C21920 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

NeuroRehab Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) NeuroRehab NeuroRehab General
C20565 TBI Quality of Life (TBI-QOL) - Fatigue T-score

The T-Score related to sensations ranging from tiredness to an overwhelming, debilitating and sustained sense of exhaustion that likely decreases one's ability to execute daily activities and function normally in family or social roles, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Epidemiology
C18647 Brief Symptom Inventory-18 (BSI18)- Global Severity Index normalized T score

Normalized T score for Global Severity Index symptom scale

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Acute Sport Related Concussion
C07015 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Inhalant use frequency

Frequency for how often the participant/subject has used inhalants (nitrous, glue, petrol, paint thinner, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C52380 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Irritable scale

Scale that rates the severity of how the subject now suffers from being irritable, easily angered as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C09937 World Health Organization Quality of Life (WHOQOL-BREF) - safe feel daily scale

Scale used to assess how safe the participant feels on a daily basis, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C19068 Upper extremity device specify text

The free-text field related to 'Upper extremity device indicator'. Indicator for whether an upper extremity device is used

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C53848 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 52 text

The word used for Word Reading item 52, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C56351 NIH Toolbox Cognitive – Oral reading recognition english age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C21488 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest item score

Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) NeuroRehab NeuroRehab General
C55303 PROMIS - Negative consequences trouble keep appointment scale

Scale related to the individual having trouble keeping appointments after he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
Displaying 201 - 225 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.