CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52361 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the first 3 items excluding ratings of 1

Sum of the ratings for the first three items of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C09943 World Health Organization Quality of Life (WHOQOL-BREF) - leisure activity opportunity scale

Scale used to assess leisure activity opportunity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C20974 Frontal Systems Behavior Scale (FrSBE) - Problem deny unaware frequency scale

Frequency of denying having problems or is unaware of problems or mistakes as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C07066 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Hallucinogen fail control indicator

Indicator for whether the participant/subject has ever tried, but failed to control, cut down or stop using hallucinogens (LSD, acid, mushrooms, PCP, Special K, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C07092 Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator

Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) NeuroRehab NeuroRehab Comprehensive
C18200 Therapeutic stretching type

Type of stretching therapy

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C07083 Alcohol Use Disorders Identification Test (AUDIT) - Cannot stop drink alcohol frequency score

Score for the frequency within the last year with which the subject found himself or herself unable to stop drinking once he or she started, as part of the Alcohol Use Disorders Identification Test (AUDIT)

NeuroRehab Supplemental-Highly Recommended Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) NeuroRehab NeuroRehab Comprehensive
C10319 Quality of Life in Swallowing Disorders (SWAL-QOL) - intake feeding tube indicator

Scale assessing how true the following statement has been for the participant during the last month: Do you now take any food or liquid through a feeding tube? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C12682 Orthosis use indicator

Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C11862 Frontal Behavioral Inventory (FBI) - restlessness roaming score

The score the caregiver gives for the participant's/subject's restlessness/roaming, as part of the Frontal Behavioral Inventory (FBI) form

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab Comprehensive
C54143 Victoria Symptom Validity Test (VSVT) - Right-Left preference value

The number that expresses the proportion of right-side responses made minus the number of left-side responses made, divided by the total number of responses made, as a part of the Victoria Symptom Validity Test (VSVT)

NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) NeuroRehab NeuroRehab General
C21289 Quality of Life - Bad dream sleep trouble past week scale

The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance

NeuroRehab Supplemental-Highly Recommended Neuro-QOL Adult Bank - Sleep Disturbance NeuroRehab NeuroRehab Comprehensive
C20426 Beck Depression Inventory II (BDI-II) - Punishment feeling scale

Scale identifying level of punishment feelings, as part of the Beck Depression Inventory II (BDI-II)

NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) NeuroRehab NeuroRehab Comprehensive
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C53901 Stroop Color and Word Test (SCW) - Color age educate predict score

Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)

NeuroRehab Supplemental-Highly Recommended Stroop Test NeuroRehab NeuroRehab General
C10279 Quality of Life in Swallowing Disorders (SWAL-QOL) - rare realization hunger indicator

Scale assessing how true the following statement has been for the participant during the last month: I'm rarely hungry anymore, as part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C58625 Communication device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab Comprehensive
C53068 Controlled Oral Word Association Test (COWAT) - Letter A Word Count

The count of distinct words the participant has named that begin with the letter A, as a part of the Controlled Oral Word Association Test (COWAT)

NeuroRehab Supplemental-Highly Recommended Controlled Oral Word Association Test (COWAT) Subtest of the Multilingual Aphasia Examination (MAE) NeuroRehab NeuroRehab Comprehensive
C54126 Test item number (numeric)

The test (or assessment) item number representing the sequence for the items/questions of each test/assessmet/questionnaire being asked

NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) NeuroRehab NeuroRehab Comprehensive
C07177 The Galveston Orientation and Amnesia Test (GOAT) - Full name score

Scored ability to accurately state first and last name, as part of the Galveston Orientation and Amnesia Test (GOAT)

NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) NeuroRehab NeuroRehab General
C56335 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C52380 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Irritable scale

Scale that rates the severity of how the subject now suffers from being irritable, easily angered as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Acute Sport Related Concussion
C52359 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Double vision scale

Scale that rates the severity of how the subject now suffers from double vision as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Concussion/Mild TBI
C53735 Wide Range Achievement Test 4 (WRAT-4) - Letter 5 text

The letter used for Letter Recognition item 5, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C54255 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recognition total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recognition Subtest

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
Displaying 151 - 175 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.