CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 3808
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53800 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 26 text

The word used for Word Reading item 26, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21811 Beck Anxiety Inventory (BAI) - Feel choke bother scale

Scale that represents how much the participant has been bothered by feeling of choking as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab General
C07018 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Opioid use frequency

Frequency for how often the participant/subject has used opioids (heroin, morphine, methadone, codeine, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

 NeuroRehab Supplemental-Highly Recommended Glasgow Coma Scale (GCS) False NeuroRehab NeuroRehab Stroke
C17390 Parkinson's Disease Quality of Life (PDQUALIF) - not sleep with spouse night 7 days scale

Rating scale for keeping you from sleeping with the spouse/partner due to the nighttime symptoms in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Parkinson's Disease
C54462 Functional Gait Assessment (FGA) - Gait task support base narrow step count

Count of steps taken by the subject/participant in performing the Gait With Narrow Base of Support task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C21009 Frontal Systems Behavior Scale (FrSBE) - Inflexible frequency scale

Frequency of being inflexible, unable to change routines as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C52373 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - First other difficulty text

The free-text field related to 'The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)- First other difficulty scale' specifying the first other difficulty text

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Comprehensive
C08526 36-item Short Form Health Survey (SF-36) - Times calm peaceful score

Score of times feeling calm and peaceful during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab Comprehensive
C09366 Hamilton Depression Rating Scale (HDRS) - weight loss measurement indicator

Score for the amount of the participant/subject's weight loss according to weekly measurements, as part of the Hamilton Depression Rating Scale (HDRS)

 NeuroRehab Supplemental-Highly Recommended Hamilton Depression Rating Scale (HDRS) False NeuroRehab NeuroRehab Comprehensive
C58618 Mobility device use propel type other text

Text describing other propulsion type of mobility device use

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C07058 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Other substance concern indicator

Indicator for whether a friend or relative or anyone else has ever expressed concern for the participant/subject's use of other substances not previously listed before, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C54446 Dynamic Gait Index (DGI) - Gait level surface task score

Score for the level-surface gait task, as part of the Dynamic Gait Index (DGI)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Comprehensive
C09585 Brief Pain Inventory (BPI) - pain walking ability interference scale

Scale assessing how much the pain has interfered with walking ability, as part of the Brief Pain Inventory (BPI) form

 NeuroRehab Supplemental-Highly Recommended Brief Pain Inventory (Short Form) True NeuroRehab NeuroRehab Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C58488 Position device type

Type for all positioning devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C21058 Frontal Systems Behavior Scale (FrSBE) - Action sequence error frequency scale

Frequency of mixing up a sequence, getting confused when doing several things in a row as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C10297 Quality of Life in Swallowing Disorders (SWAL-QOL) - difficult find food indicator

Scale assessing how true the following statement has been for the participant during the last month: It is difficult to find foods that I both like and can eat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C02304 Adverse event relatedness scale

Scale of the causality between the treatment modality/intervention and the specific adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C07108 Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator

Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False NeuroRehab NeuroRehab General
C58473 Mobility device use frequency type

Frequency type with which the participant/subject uses their mobility device(s), if applicable

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C20498 Brief Visuospatial Memory Test - Revised (BVMT-R) - Delay interval minute time

Time of delay interval in minutes for Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab General
C17226 Swallowing Disturbance Questionnaire (SwDQ) - difficulty chew solid food score

Score for how frequent the participant/subject has difficulty chewing solid foods like an apple, cookie, or cracker, as a part of Swallowing Disturbance Questionnaire (SDQ)

 NeuroRehab Supplemental-Highly Recommended Swallowing Disturbance Questionnaire (SDQ) True NeuroRehab NeuroRehab Parkinson's Disease
C21639 Fall details assistive device type

Type of assistive device(s) the participant/subject was using when the fall recorded in the Falls Diary occurred

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C56279 NIH Toolbox Cognitive – Cognition crystallized composite unadjusted scale score

The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C21492 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

 NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False NeuroRehab NeuroRehab General
Displaying 151 - 175 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.