CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09946 World Health Organization Quality of Life (WHOQOL-BREF) - ability perform daily scale

Scale used to assess how satisfied the participant is with his ability to perform daily living activities, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab Comprehensive
C17970 Positioning device text

Text specification of any positioning device currently used by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C18102 Quality of Life in Swallowing Disorders (SWAL-QOL) - race indicator

Racial group of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C55687 PROMIS - Dyspnea Functional limitations weigh more than 20 pound scale

Scale related to an individual being able to lift something weighing more than 20 lbs (about 9 kg, like a medium-sized suitcase), as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Stroke
C11850 Frontal Behavioral Inventory (FBI) - personal neglect score

The score the caregiver gives for the participant's/subject's personal neglect, as part of the Frontal Behavioral Inventory (FBI) form

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab General
C20772 Patient-Reported Outcome Measurement Information System (PROMIS) - Upset assessment past week scale

The scale which represents how often the participant felt upset in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab Comprehensive
C07041 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cannabis fail frequency

Frequency for how often the participant/subject has used failed to do what was normally expected because of the use of cannabis (marijuana, pot, grass, hash, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C10710 Walking 1 cane use indicator

Indicator whether the participant/subject uses one cane for walking

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C21495 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial score

Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) NeuroRehab NeuroRehab Comprehensive
C55317 PROMIS - Negative consequences sad when drink scale

Scale related to the individual being sad when he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Comprehensive
C54461 Functional Gait Assessment (FGA) - Gait task eye closed duration

Time taken by the subject/particpant to complete the Gait With Eyes Closed task, as part of the Functional Gait Assessment (FGA)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C20441 Beck Depression Inventory II (BDI-II) - Sex interest loss scale

Scale identifying level of loss of interest in sex, as part of the Beck Depression Inventory II (BDI-II)

NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) NeuroRehab NeuroRehab Comprehensive
C56515 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 30 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 30 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C21058 Frontal Systems Behavior Scale (FrSBE) - Action sequence error frequency scale

Frequency of mixing up a sequence, getting confused when doing several things in a row as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab General
C55721 PROMIS - Self Efficacy managing emotions find way to manage stress scale

Scale related to an individual being able to find ways to manage stress, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab Comprehensive
C20451 Brief Visuospatial Memory Test - Revised (BVMT-R) - Trial 3 raw score

Raw score for Trial 3 portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) NeuroRehab NeuroRehab Comprehensive
C10294 Quality of Life in Swallowing Disorders (SWAL-QOL) - food liquid fall out nose problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Food or liquid coming out of your nose. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C55680 PROMIS - Dyspnea Functional limitations walk half mile on ground scale

Scale related to an individual being able to walk half mile (almost 1 km) on flat ground at a normal speed without stopping, as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C09370 Hamilton Depression Rating Scale (HDRS) - early night insomnia indicator

Score for the participant/subject's difficulty, if any, with early-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

NeuroRehab Supplemental-Highly Recommended Hamilton Depression Rating Scale (HDRS) NeuroRehab NeuroRehab General
C20851 Patient-Reported Outcome Measurement Information System (PROMIS) - sleepy during daytime past week scale

The scale which represents how often the participant was sleepy during the daytime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment NeuroRehab NeuroRehab Comprehensive
C56283 NIH Toolbox Cognitive – Cognition fluid composite raw score

The raw score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C54141 Victoria Symptom Validity Test (VSVT) - Total difficult item latency value

The subject's total average response latency for the difficult item types of the Victoria Symptom Validity Test (VSVT)

NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) NeuroRehab NeuroRehab Comprehensive
C56515 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 30 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 30 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C07192 The Galveston Orientation and Amnesia Test (GOAT) - Total score

Total score, as part of the Galveston Orientation and Amnesia Test (GOAT)

NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) NeuroRehab NeuroRehab General
C56352 NIH Toolbox Cognitive – Oral reading recognition english age 7 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
Displaying 126 - 150 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.