CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09311 Apathy Scale (AS) - Unconcern scale

The scale related to how concerned with the ongoings of life the subject is, as part of the Apathy Scale (AS) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab General
C53728 Wide Range Achievement Test 4 (WRAT-4) - Letter 1 score

Score for Letter Recognition item 1, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20584 TBI Quality of Life (TBI-QOL) - Stigma T-score

The T-Score related to others' perceptions of oneself and publically enacted negativity, prejudice, and discrimination as a result of injury-related manifestations, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Epidemiology
C53857 Wide Range Achievement Test 4 Revision 4 (WRAT) - total raw score

Word reading total raw score for the Wide Range Achievement Test Revision 4 (WRAT)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C18632 Brief Symptom Inventory-18 (BSI18)- Feeling worthless scale

The scale for the participant's distress from feelings of worthlessness

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C07026 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire sedative sleep pill frequency

Frequency for how often the particpant/subject had a strong desire to use sedative or sleeping pills (Valium, Serepax, Rohypnol, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C52366 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for items 1-16 excluding ratings of 1

Sum of the ratings for items 1-16 of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Subacute Sport Related Concussion
C09948 World Health Organization Quality of Life (WHOQOL-BREF) - ability satisfaction scale

Scale used to assess ability satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab General
C21651 Upper extremity orthosis type

Type of upper extremity orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs) the participant/subject uses

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C53853 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 54 score

The score for Word Reading item 54, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20982 Frontal Systems Behavior Scale (FrSBE) - Interrupt conversation frequency scale

Frequency of talking out of turn, interrupts others in conversations as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C20773 Patient-Reported Outcome Measurement Information System (PROMIS) - Heart rate fast assessment past week scale

The scale which represents how often the participant had a racing or pounding heart in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and PHQ-15 - Feeling your heart pount or race

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety True NeuroRehab NeuroRehab General
C07071 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Total b score

Score for the total sum of all the question B scores (alcoholic beverages), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C18182 Therapy rehabilitation frequency

Frequency the participant/subject received the therapy or rehabilitation

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C20556 TBI Quality of Life (TBI-QOL) - Ask help T-score

The T-Score related to ability to and comfortability with asking others for help, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Comprehensive
C18644 Brief Symptom Inventory-18 (BSI18)- Anxiety raw score

Raw score for anxiety symptom scale

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Comprehensive
C07097 Center for Epidemiologic Studies-Depression Scale (CES-D) - everything effort indicator

Indicates how often the subject felt that everything he/she did was an effort in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False NeuroRehab NeuroRehab Comprehensive
C20805 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale

The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance True NeuroRehab NeuroRehab Comprehensive
C07088 Alcohol Use Disorders Identification Test (AUDIT) - Drink injury indicator score

Score for the indicator of whether someone that the subject knows was injured due to his or her drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 NeuroRehab Supplemental-Highly Recommended Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False NeuroRehab NeuroRehab Comprehensive
C55726 PROMIS - Self Efficacy managing emotions manage anger other dont understand scale

Scale related to an individual being able to manage his/her anger when others don't understand what he/she is going through, as part of the PROMIS Self-Efficacy Managing Emotions

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions False NeuroRehab NeuroRehab General
C09936 World Health Organization Quality of Life (WHOQOL-BREF) - concentration scale

Scale used to assess concentration ability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C12685 Wheelchair use frequency

Frequency with which the participant/subject uses their wheelchair, if applicable

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C17834 Quality of Life in Swallowing Disorders (SWAL-QOL) - age number

Age of subject/participant

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C55677 PROMIS - Dyspnea Functional limitations put socks stockings on scale

Scale related to an individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Stroke
C11867 Frontal Behavioral Inventory (FBI) - utilization behavior score

The score the caregiver gives for the participant's/subject's utilization behavior, as part of the Frontal Behavioral Inventory (FBI) form

 NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) True NeuroRehab NeuroRehab Comprehensive
Displaying 101 - 125 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.