CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 3808
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14837 Activities specific Balance Confidence Scale (ABC-Scale) - reach scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when reaching for a small object off a shelf at eye level

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14837 Activities specific Balance Confidence Scale (ABC-Scale) - reach scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when reaching for a small object off a shelf at eye level

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab General
C14840 Activities specific Balance Confidence Scale (ABC-Scale) - sweep scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when sweeping the floor

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14840 Activities specific Balance Confidence Scale (ABC-Scale) - sweep scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when sweeping the floor

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab General
C14834 Activities specific Balance Confidence Scale (ABC-Scale) - walk inside home scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking inside the home

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14834 Activities specific Balance Confidence Scale (ABC-Scale) - walk inside home scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking inside the home

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab General
C14835 Activities specific Balance Confidence Scale (ABC-Scale) - walk stairs scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking up or down stairs

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14835 Activities specific Balance Confidence Scale (ABC-Scale) - walk stairs scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking up or down stairs

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab General
C14841 Activities specific Balance Confidence Scale (ABC-Scale) - walk to car scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking outside of the house to a car parked in the driveway

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C14841 Activities specific Balance Confidence Scale (ABC-Scale) - walk to car scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking outside of the house to a car parked in the driveway

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab General
C58491 Activity daily living device type

Type for all activity of daily living devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C58491 Activity daily living device type

Type for all activity of daily living devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C58493 Activity Daily Living device type other text

Text describing the presence of any other activity of daily living device used

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C58493 Activity Daily Living device type other text

Text describing the presence of any other activity of daily living device used

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C58575 Activity daily living device type use indicator

Indicator whether the participant/subject currently uses the selected types of activity of daily living devices

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C58575 Activity daily living device type use indicator

Indicator whether the participant/subject currently uses the selected types of activity of daily living devices

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C58471 ADL device use indicator

Indicator of whether the participant/subject uses any ADL (activities of daily living) devices

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C58471 ADL device use indicator

Indicator of whether the participant/subject uses any ADL (activities of daily living) devices

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C02310 Adverse event CTCAE term name

Name that represents the Common Terminology Criteria for Adverse Events (CTCAE) term for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C02310 Adverse event CTCAE term name

Name that represents the Common Terminology Criteria for Adverse Events (CTCAE) term for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02308 Adverse event during study indicator

Indicator of whether the participant experienced any adverse events during the study

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C02308 Adverse event during study indicator

Indicator of whether the participant experienced any adverse events during the study

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02311 Adverse event MedDRA lowest level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lowest Level Term (LLT) for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02311 Adverse event MedDRA lowest level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lowest Level Term (LLT) for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C02304 Adverse event study intervention relatedness investigator assessment grade

Grade of the causality between the treatment modality/intervention and the specific adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.