CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

4416 results.

Operations

Selected 16 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2886-C10300	C10300	Quality of Life in Swallowing Disorders (SWAL-QOL) - fear choke food problem indicator	Scale assessing how true the following statement has been for the participant during the last month: I fear I may start choking when I eat food. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2910-C55318	C55318	PROMIS - Negative consequences drink cause problems with others scale	Scale related to drinking creating problems between the individual and others, as part of the PROMIS Negative Consequences	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Alcohol: Negative Consequences	False	NeuroRehab	NeuroRehab Stroke
F2892-C07111	C07111	Center for Epidemiologic Studies Depression Scale (CES-D) - total score	CES-D Total Score - summation of the scores for the 20 items (0-60)	NeuroRehab Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	NeuroRehab	NeuroRehab General
F2914-C20813	C20813	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale	The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2880-C52955	C52955	Hopkins Verbal Learning Test Revised (HVLT-R) - Total recall raw score	The raw score for Total Recall, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)	NeuroRehab Supplemental-Highly Recommended	Hopkins Verbal Learning Test - Revised (HVLT-R)	True	NeuroRehab	NeuroRehab Comprehensive
F2887-C17229	C17229	Swallowing Disturbance Questionnaire (SwDQ) - chew food dribble from mouth score	Score for how frequent the participant/subject chews up food dribble from the mouth, as a part of Swallowing Disturbance Questionnaire (SDQ)	NeuroRehab Supplemental-Highly Recommended	Swallowing Disturbance Questionnaire (SDQ)	True	NeuroRehab	NeuroRehab Parkinson's Disease
F2912-C56495	C56495	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work around home scale	Scale which represents how often the participant felt pain interfered with work around the home over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2877-C56282	C56282	NIH Toolbox Cognitive Cognition crystallized composite fully adjusted scale score	The fully adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
F2884-C21495	C21495	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial score	Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	NeuroRehab Supplemental-Highly Recommended	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	NeuroRehab	NeuroRehab General
F2910-C55310	C55310	PROMIS - Negative consequences feel anxious when drink scale	Scale related to the individual feeling anxious when he/she drank, as part of the PROMIS Negative Consequences	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Alcohol: Negative Consequences	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab General

4416 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.