CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

4416 results.

Operations

Selected 16 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C07178	The Galveston Orientation and Amnesia Test (GOAT) - Born date score	Scored ability to accurately state date of birth, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab General
C56336	NIH Toolbox Cognitive Pattern comparison processing speed age 7 up age adjusted scale score	The age adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
C53786	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 19 text	The word used for Word Reading item 19, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
C54256	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Recall Subtest	NeuroRehab Supplemental-Highly Recommended	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	NeuroRehab	NeuroRehab General
C01001	Glasgow Coma Scale (GCS) - motor response scale	Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	NeuroRehab Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	NeuroRehab	NeuroRehab Comprehensive
C20553	TBI Quality of Life (TBI-QOL) - Anger T-score	The T-Score related to verbal and non-verbal components of self-reported angry mood (irritability, frustration), negative social cognitions (interpersonal sensitivity, envy, disagreeableness), and efforts to control anger, as part of the TBI Quality of Life (TBI-QOL)	NeuroRehab Supplemental-Highly Recommended	Traumatic Brain Injury - Quality of Life (TBI-QOL)	False	NeuroRehab	NeuroRehab Concussion/Mild TBI
C53861	Wide Range Achievement Test 4 (WRAT-4) - Reading grade equivalence score	The subject's grade equivalence score for reading, as part of the Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
C07030	Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Tobacco product problem frequency	Frequency for how often the participant/subject has used tobacco products (cigarettes, chewing tobacco, cigars, etc.) which led to health, social, legal, or financial problems in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)	NeuroRehab Supplemental-Highly Recommended	Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST)	False	NeuroRehab	NeuroRehab Comprehensive
C09952	World Health Organization Quality of Life (WHOQOL-BREF) - living place scale	Scale used to assess how satisfied the participant is with his living space, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab General
C21655	Back brace frequency type	Describes how long the participant/subject wears the body jacket/back brace/TSLO	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab Comprehensive
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab General

4416 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.