CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

4296 results.

Operations

Selected 21 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2919-C58680	C58680	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale	Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab General
F2886-C10291	C10291	Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking throat problem indicator	Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
F2910-C55309	C55309	PROMIS - Negative consequences sick when drink scale	Scale related to the individual getting sick after he/she drank, as part of the PROMIS Negative Consequences	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Alcohol: Negative Consequences	False	NeuroRehab	NeuroRehab Stroke
F2892-C07102	C07102	Center for Epidemiologic Studies-Depression Scale (CES-D) - happy indicator	Indicates how often the subject felt happy in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	NeuroRehab Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	NeuroRehab	NeuroRehab General
F2916-C20783	C20783	Patient-Reported Outcome Measurement Information System (PROMIS) - Other people reaction worry assessment past week scale	The scale which represents how often the participant was worried about other people's reactions to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2865-C14843	C14843	Activities specific Balance Confidence Scale (ABC-Scale) - across parking lot scale	Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking across a parking lot to the mall	NeuroRehab Supplemental-Highly Recommended	Activities Specific Balance Confidence Scale (ABC-Scale)	True	NeuroRehab	NeuroRehab General
F2887-C17235	C17235	Swallowing Disturbance Questionnaire (SwDQ) - cough swallow liquid score	Score for how frequent the participant/subject coughs while swallowing liquids, as a part of Swallowing Disturbance Questionnaire (SDQ)	NeuroRehab Supplemental-Highly Recommended	Swallowing Disturbance Questionnaire (SDQ)	True	NeuroRehab	NeuroRehab Comprehensive
F2913-C21290	C21290	Quality of Life - Awake pain past week scale	The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance	NeuroRehab Supplemental-Highly Recommended	Neuro-QOL Adult Bank - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
F2869-C53760	C53760	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 4 text	The word used for Word Reading item 4, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
F2880-C52957	C52957	Hopkins Verbal Learning Test Revised (HVLT-R) - Delayed recall raw score	The raw score for Delayed Recall, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)	NeuroRehab Supplemental-Highly Recommended	Hopkins Verbal Learning Test - Revised (HVLT-R)	True	NeuroRehab	NeuroRehab Comprehensive
F2884-C21486	C21486	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial number	Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest	NeuroRehab Supplemental-Highly Recommended	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	NeuroRehab	NeuroRehab General
F2910-C55301	C55301	PROMIS - Negative consequences nervous when drink scale	Scale related to the individual feeling nervous when he/she drank, as part of the PROMIS Negative Consequences	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Alcohol: Negative Consequences	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2869-C53849	C53849	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 52 score	The score for Word Reading item 52, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
F2863-C52375	C52375	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Depression scale	Scale that rates the severity of how the subject now suffers from feeling depressed or tearful as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Concussion/Mild TBI
F2877-C56287	C56287	NIH Toolbox Cognitive Cognition fluid composite national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab General

4296 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.