CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 4251 - 4275 of 4296
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C51620 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere daily home life status

The status of interference in home life related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C51620 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere daily home life status

The status of interference in home life related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C51632 Strengths and Difficulties Questionnaire (SDQ) - Externalising score

The score generated by summing the 'conduct' and 'hyperactivity' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C19126 Clinical trial name

Name of clinical trial in which patient/participant is enrolled

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C51632 Strengths and Difficulties Questionnaire (SDQ) - Externalising score

The score generated by summing the 'conduct' and 'hyperactivity' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C50083 Strengths and Difficulties Questionnaire (SDQ) - solitary scale

The scale of if subject/participant is rather solitary/prefers to play alone, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C21961 Pediatric Quality of Life Inventory (PedsQL) - Problem peer teasing difficulty scale

Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C50091 Strengths and Difficulties Questionnaire (SDQ) - Generally like scale

The scale indicating if the participant/subject is generally liked by other children, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C21936 Pediatric Quality of Life Inventory (PedsQL) - Problem bath shower alone scale

Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C50135 Strengths and Difficulties Questionnaire (SDQ) - Gets along better adults than children scale

The scale indicating if the participant/subject gets along better with adults than with other children, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C21948 Pediatric Quality of Life Inventory (PedsQL) - Problem heavy lift difficulty scale

Scale of problems with lifting something heavy, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C21620 Gestational age value range

Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

 NeuroRehab Core Infant Pediatrics Demographics False NeuroRehab NeuroRehab General
C21957 Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale

Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C21940 Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale

Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C21951 Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C51633 Strengths and Difficulties Questionnaire (SDQ) - Internalising score

The score generated by summing the 'emotional' and 'peer problems' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C55575 Neurological disorder indicator

Indicator as to whether the participant/subject has a neurological disorder

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

 NeuroRehab Core Infant Pediatrics Demographics False NeuroRehab NeuroRehab Comprehensive
C50082 Strengths and Difficulties Questionnaire (SDQ) - Temper scale

The scale of how often participant/subject loses their temper, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

 NeuroRehab Core Infant Pediatrics Demographics False NeuroRehab NeuroRehab General
C50090 Strengths and Difficulties Questionnaire (SDQ) - Unhappy scale

The scale of the participant/subject feeling unhappy, depressed or tearful, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.