CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 4201 - 4225 of 4296
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53851 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 53 score

The score for Word Reading item 53, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20978 Frontal Systems Behavior Scale (FrSBE) - No concern urine bowel control loss frequency scale

Frequency of losing control of urine or bowels and seems unconcerned as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C55719 PROMIS - Self Efficacy managing emotions handle upset situation scale

Scale related to an individual being able to handle upsetting situations, as part of the PROMIS Self-Efficacy Managing Emotions

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions False NeuroRehab NeuroRehab General
C07069 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Drug by injection indicator

Indicator for whether the participant/subject has ever taken a drug via injection before, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C10721 Walking other assistive device use age started value

Age of the participant/subject when he/she began using the other assistive device for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C20553 TBI Quality of Life (TBI-QOL) - Anger T-score

The T-Score related to verbal and non-verbal components of self-reported angry mood (irritability, frustration), negative social cognitions (interpersonal sensitivity, envy, disagreeableness), and efforts to control anger, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Comprehensive
C18642 Brief Symptom Inventory-18 (BSI18)- Depression raw score

Raw score for depression symptom scale

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Comprehensive
C07095 Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator

Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

 NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) False NeuroRehab NeuroRehab Comprehensive
C20842 Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken sleepy past week scale

The scale which represents how often the participant still felt sleepy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment True NeuroRehab NeuroRehab Stroke
C07086 Alcohol Use Disorders Identification Test (AUDIT) - Guilt remorse after drink frequency score

Score for the frequency within the last year with which the subject found himself or herself with feelings or guilt or remorse after drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

 NeuroRehab Supplemental-Highly Recommended Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) False NeuroRehab NeuroRehab Comprehensive
C58507 Android application text

Text describing the type of Android application used

 NeuroRehab Supplemental-Highly Recommended Devices: Communication False NeuroRehab NeuroRehab General
C10322 Quality of Life in Swallowing Disorders (SWAL-QOL) - general health indicator

Scale assessing the general health of the participant. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C55675 PROMIS - Dyspnea Functional limitations take bath without help scale

Scale related to an individual being able to take a bath without help, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Stroke
C11865 Frontal Behavioral Inventory (FBI) - hyperorality food fads score

The score the caregiver gives for the participant's/subject's hyperorality/food fads, as part of the Frontal Behavioral Inventory (FBI) form

 NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) True NeuroRehab NeuroRehab Comprehensive
C55704 PROMIS - Self Efficacy managing emotions keep anxiety from overwhelm scale

Scale related to an individual being able to keep anxiety from becoming overwhelming, as part of the PROMIS Self-Efficacy Managing Emotions

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions False NeuroRehab NeuroRehab Comprehensive
C21483 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest response text

Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

 NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False NeuroRehab NeuroRehab Comprehensive
C55305 PROMIS - Negative consequences took risks when drink scale

Scale related to the individual taking risks when he/she drank, as part of the PROMIS Negative Consequences

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False NeuroRehab NeuroRehab Comprehensive
C20429 Beck Depression Inventory II (BDI-II) - Suicidal thought wish scale

Scale identifying level of suicidal thoughts or wishes, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab Comprehensive
C20832 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble assessment past week scale

The scale which represents how often the participant had trouble sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance True NeuroRehab NeuroRehab Stroke
C53904 Stroop Color and Word Test (SCW) - Color word raw score

Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 NeuroRehab Supplemental-Highly Recommended Stroop Test True NeuroRehab NeuroRehab General
C10282 Quality of Life in Swallowing Disorders (SWAL-QOL) - coughing problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Coughing. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C55668 PROMIS - Dyspnea Functional limitations prepare meals scale

Scale related to an individual being able to prepare meals, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C53194 Controlled Oral Word Association Test (COWAT) - Semantic Fluency Total Score

Total score related to semantic fluency, as a part of the Controlled Oral Word Association Test (COWAT)

 NeuroRehab Supplemental-Highly Recommended Controlled Oral Word Association Test (COWAT) Subtest of the Multilingual Aphasia Examination (MAE) True NeuroRehab NeuroRehab Comprehensive
C54129 Victoria Symptom Validity Test (VSVT) - Response latency duration

The amount of time (in seconds) the subjecttakes to answer a question, as a part of the Victoria Symptom Validity Test (VSVT)

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab Comprehensive
C07180 The Galveston Orientation and Amnesia Test (GOAT) - City location score

Scored ability to accurately name the city the subject is currently located, as part of the Galveston Orientation and Amnesia Test (GOAT)

 NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) True NeuroRehab NeuroRehab General
Displaying 4201 - 4225 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.