CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21654 Back brace indicator

Indicator of whether the participant/subject wears a type of orthosis for the spine

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C56288 NIH Toolbox Cognitive – Cognition fluid composite fully adjusted scale score

The fully adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C21501 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest item number

Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

 NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False NeuroRehab NeuroRehab General
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C54257 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Recall Subtest

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab Comprehensive
C20445 Brief Visuospatial Memory Test - Revised (BVMT-R) - Trial 1 T-score

T-score for Trial 1 portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab General
C53821 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 36 score

The score for Word Reading item 36, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C56319 NIH Toolbox Cognitive – List scoring working memory age 7 up computed score

The computed score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab Comprehensive
C53817 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 34 score

The score for Word Reading item 34, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21857 Beck Anxiety Inventory (BAI) - Terrified afraid bother scale

Scale that represents how much the participant has been bothered by feeling terrified or afraid as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab General
C21891 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental task type

Type of test, as part of Brief Test of Adult Cognition by Telephone(BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab Comprehensive
C14849 Activities specific Balance Confidence Scale (ABC-Scale) - icy sidewalk scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking outside on icy sidewalks

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C20574 TBI Quality of Life (TBI-QOL) - Independence T-score

The T-Score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Comprehensive
C53781 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 15 score

The score for Word Reading item 15, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C54455 Dynamic Gait Index (DGI) - Gait turn pivot task score

Score for the subject/participant's performance on the Gait And Pivot Turn task, as part of the Dynamic Gait Index (DGI)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C21044 Frontal Systems Behavior Scale (FrSBE) - Activity spontaneous involvement frequency scale

Frequency of getting involved with activities spontaneously (such as hobbies) as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C52365 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Noise sensitivity scale

Scale that rates the severity of how the subject now suffers from noise sensitivity and easily upset by loud noise as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Acute Sport Related Concussion
C08507 36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score

Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab General
C53777 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 13 score

The score for Word Reading item 13, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21811 Beck Anxiety Inventory (BAI) - Feel choke bother scale

Scale that represents how much the participant has been bothered by feeling of choking as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab Comprehensive
C09364 Hamilton Depression Rating Scale (HDRS) - hypochondriasis indicator

Score for the intensity of the participant/subject's hypochondriasis, as part of the Hamilton Depression Rating Scale (HDRS)

 NeuroRehab Supplemental-Highly Recommended Hamilton Depression Rating Scale (HDRS) False NeuroRehab NeuroRehab General
C07075 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Total f score

Score for the total sum of all the question F scores (inhalants), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C52365 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Noise sensitivity scale

Scale that rates the severity of how the subject now suffers from noise sensitivity and easily upset by loud noise as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Concussion/Mild TBI
C17367 Parkinson's Disease Quality of Life (PDQUALIF) - aching limb scale

Rating Scale for having aching/burning/coldness/numbness in the hand/feet as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Parkinson's Disease
C54463 Functional Gait Assessment (FGA) - Gait task ambulate backward score

Score for the subject/participant's performance on the Ambulating Backwards task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Comprehensive
Displaying 301 - 325 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.