CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C55278	Post Concussion Symptom Scale (PCSS) - Feel foggy symptom score	The score for symptoms of feeling "foggy" as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21365	Immediate Post-Concussion Assessment Testing (ImPACT) - School year repeat indicator	Indicator of whether the subject has to repeat one or more years of school, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21437	Immediate Post-Concussion Assessment Testing (ImPACT) - Word memory total percent correct percentage value	The total percent correct on the word memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21418	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Light sensitivity score	The subject's current sensitivity to light rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C55273	Post Concussion Symptom Scale (PCSS) - Sadness symptom score	The score for sadness symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Comprehensive
C21525	Language secondary ISO code	Code (ISO 639-2) for the language the participant/subject speaks second-most often	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21429	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Visual problem score	The subject's current visual problems rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21373	Immediate Post-Concussion Assessment Testing (ImPACT) - Confusion concussion result count	Number of concussions that resulted in confusion, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21445	Immediate Post-Concussion Assessment Testing (ImPACT) - X and O memory total correct count	The memory total correct on the X's and O's module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21426	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Mental fog assessment score	The subject's current feeling mentally foggy rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21389	Immediate Post-Concussion Assessment Testing (ImPACT) - Test version type	Type of test version used for the exam, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21442	Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory delay correct distractor count	The number of delayed correct distractors on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21386	Immediate Post-Concussion Assessment Testing (ImPACT) - Strenuous exercise 3 hour duration indicator	Indicator of whether the subject did strenuous exercise in the last 3 hours, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C55281	Post Concussion Symptom Scale (PCSS) - Visual problem symptom score	The score for visual problem symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Comprehensive
C21437	Immediate Post-Concussion Assessment Testing (ImPACT) - Word memory total percent correct percentage value	The total percent correct on the word memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21381	Immediate Post-Concussion Assessment Testing (ImPACT) - Brain surgery patient medical history indicator	Indicator of whether the subject has a history of brain surgery, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21453	Immediate Post-Concussion Assessment Testing (ImPACT) - Symbol match hidden average correct reaction time duration	The hidden average reaction time total correct duration, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21434	Immediate Post-Concussion Assessment Testing (ImPACT) - Word memory delay hit count	The number of delayed hits on the word memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21397	Immediate Post-Concussion Assessment Testing (ImPACT) - Visual motor speed composite percentage value	The percentile of the subject's visual motor speed composite score (if available), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C21450	Immediate Post-Concussion Assessment Testing (ImPACT) - Symbol match visible total correct count	The number of visible total correct responses on the symbol match module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21394	Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory composite percentage value	The percentile of the subject's visual memory composite score (if available), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21415	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Sleep greater than normal duration score	The subject's current sleep more than usual rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C00005	Birth country name	Name for country where the participant/subject was born	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C55272	Post Concussion Symptom Scale (PCSS) - Irritability symptom score	The score for irritability symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21412	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Dizziness score	The subject's current dizziness rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.