CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 26 - 50 of 4412
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C56328 NIH Toolbox Cognitive ? Dimensional change card sort age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery.

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C18100 Quality of Life in Swallowing Disorders (SWAL-QOL) - age value

Age of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C55685 PROMIS - Dyspnea Functional limitations lift something less 5 pound scale

Scale related to an individual being able to lift something weighing less than 5 lbs (about 2 kg, like a houseplant), as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Stroke
C54464 Functional Gait Assessment (FGA) - Gait task ambulate backward duration

Time take for the subject/participant to complete the Ambulating Backwards task, as part of the Functional Gait Assessment (FGA)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Comprehensive
C11848 Frontal Behavioral Inventory (FBI) - disorganization score

The score the caregiver gives for the participant's/subject's disorganization, as part of the Frontal Behavioral Inventory (FBI) form.

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab General
C20768 Quality of Life - Anxiety assistance assessment past week scale

The scale which represents how often the participant felt like help was needed for his anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab Comprehensive
C07039 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Other substance problem frequency

Frequency for how often the participant/subject has used any other substance not previously listed which led to health, social, legal, or financial problems in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST).

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility.

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C55796 Test of Premorbid Functioning - Raw score

The raw score that the subject earned, as part of the Test of Premorbid Functioning.

NeuroRehab Supplemental-Highly Recommended Test of Premorbid Functioning NeuroRehab NeuroRehab Comprehensive
C55315 PROMIS - Negative consequences argument when drink scale

Scale related to the individual getting into an argument when he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Comprehensive
C52361 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the first 3 items excluding ratings of 1

Sum of the ratings for the first three items of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1.

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Concussion/Mild TBI
C20439 Beck Depression Inventory II (BDI-II) - Concentration difficulty scale

Scale identifying level of difficulty concentrating, as part of the Beck Depression Inventory II (BDI-II).

NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) NeuroRehab NeuroRehab Comprehensive
C56513 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make difficult plan social activity scale

Scale related to how often pain made it difficult for an individual to plan social activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C20501 Grooved Pegboard Test (GPT) - Dominant hand time duration

Duration of time for hand to place pegs as part of Grooved Pegboard Test (GPT)

NeuroRehab Supplemental-Highly Recommended Grooved Pegboard Test NeuroRehab NeuroRehab General
C55719 PROMIS - Self Efficacy managing emotions handle upset situation scale

Scale related to an individual being able to handle upsetting situations, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab Comprehensive
C10292 Quality of Life in Swallowing Disorders (SWAL-QOL) - food sticking mouth problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Food sticking in your mouth. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C55678 PROMIS - Dyspnea Functional limitations stand for 5 minute scale

Scale related to an individual being able to stand for at least 5 minutes, as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C52371 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the 13 items (4-16) excluding ratings of 1

Sum of the ratings for the 13 items (4-16) of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1.

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C10295 Quality of Life in Swallowing Disorders (SWAL-QOL) - coughing stuck food liquid out mouth problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Coughing food or liquid out of your mouth when it gets stuck. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C54250 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Picture naming total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Picture Naming Subtest

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
C21490 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest total raw score

Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) NeuroRehab NeuroRehab General
C20574 TBI Quality of Life (TBI-QOL) - Independence T-score

The T-Score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL).

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Concussion/Mild TBI
C53842 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 48 text

The word used for Word Reading item 48, as part of Wide Range Achievement Test 4 (WRAT-4).

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C14699 Berg Balance Scale (BBS) - unsupport feet together scale

The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities.

NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) NeuroRehab NeuroRehab Comprehensive
C17367 Parkinson's Disease Quality of Life (PDQUALIF) - aching limb scale

Rating Scale for having aching/burning/coldness/numbness in the hand/feet as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
Displaying 26 - 50 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.