CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C51632 Strengths and Difficulties Questionnaire (SDQ) - Externalising score

The score generated by summing the 'conduct' and 'hyperactivity' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C19126 Clinical trial name

Name of clinical trial in which patient/participant is enrolled

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C51632 Strengths and Difficulties Questionnaire (SDQ) - Externalising score

The score generated by summing the 'conduct' and 'hyperactivity' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C50083 Strengths and Difficulties Questionnaire (SDQ) - solitary scale

The scale of if subject/participant is rather solitary/prefers to play alone, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C21961 Pediatric Quality of Life Inventory (PedsQL) - Problem peer teasing difficulty scale

Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C50091 Strengths and Difficulties Questionnaire (SDQ) - Generally like scale

The scale indicating if the participant/subject is generally liked by other children, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C21936 Pediatric Quality of Life Inventory (PedsQL) - Problem bath shower alone scale

Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
C50135 Strengths and Difficulties Questionnaire (SDQ) - Gets along better adults than children scale

The scale indicating if the participant/subject gets along better with adults than with other children, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C21948 Pediatric Quality of Life Inventory (PedsQL) - Problem heavy lift difficulty scale

Scale of problems with lifting something heavy, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
C21957 Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale

Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
C21940 Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale

Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C21951 Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C51633 Strengths and Difficulties Questionnaire (SDQ) - Internalising score

The score generated by summing the 'emotional' and 'peer problems' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C55575 Neurological disorder indicator

Indicator as to whether the participant/subject has a neurological disorder

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab Comprehensive
C50082 Strengths and Difficulties Questionnaire (SDQ) - Temper scale

The scale of how often participant/subject loses their temper, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab General
C50090 Strengths and Difficulties Questionnaire (SDQ) - Unhappy scale

The scale of the participant/subject feeling unhappy, depressed or tearful, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C21933 Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale

Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C50134 Strengths and Difficulties Questionnaire (SDQ) - Spiteful scale

The scale indicating if the participant/subject can be spiteful to others, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C51621 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere friendship status

The status of interference with friendships related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.