CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2940-C00311	C00311	Birth weight report value	Birth weight according to the participant's medical report or reported by the parent or legal guardian	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab Comprehensive
F2940-C00311	C00311	Birth weight report value	Birth weight according to the participant's medical report or reported by the parent or legal guardian	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab General
F2942-C10719	C10719	Wheelchair use age started value	Age of the participant/subject when he/she began using a wheelchair	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C10713	C10713	Walking cane or crutches pair use age started value	Age of the participant/subject when he/she began using two canes or crutches for walking	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2939-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2907-C20417	C20417	National Institutes of Health Stroke Scale (NIHSS) - Motor leg amputation text	The text field for explaining the amputation or joint fusion for question related to motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
F2939-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2907-C20419	C20419	National Institutes of Health Stroke Scale (NIHSS) - Limb ataxia amputation text	The text field for explaining the amputation or joint fusion for question related to Limb ataxia assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
F2942-C10713	C10713	Walking cane or crutches pair use age started value	Age of the participant/subject when he/she began using two canes or crutches for walking	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C10719	C10719	Wheelchair use age started value	Age of the participant/subject when he/she began using a wheelchair	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2907-C20420	C20420	National Institutes of Health Stroke Scale (NIHSS) - Dysarthria intubation text	The text field for explaining the intubation or other physical barrier related to Dysarthria assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
F2907-C20417	C20417	National Institutes of Health Stroke Scale (NIHSS) - Motor leg amputation text	The text field for explaining the amputation or joint fusion for question related to motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
F2907-C20419	C20419	National Institutes of Health Stroke Scale (NIHSS) - Limb ataxia amputation text	The text field for explaining the amputation or joint fusion for question related to Limb ataxia assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
F2907-C20420	C20420	National Institutes of Health Stroke Scale (NIHSS) - Dysarthria intubation text	The text field for explaining the intubation or other physical barrier related to Dysarthria assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
F2870-C07177	C07177	The Galveston Orientation and Amnesia Test (GOAT) - Full name score	Scored ability to accurately state first and last name, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab Comprehensive
F2870-C07185	C07185	The Galveston Orientation and Amnesia Test (GOAT) - Post injury event detail score	Scored ability to identify the detail of the first event the subject can remember after the accident, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab Comprehensive
F2869-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
F2906-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2870-C07183	C07183	The Galveston Orientation and Amnesia Test (GOAT) - Mode of Transportation score	Scored ability to accurately identify the mode of transportation to the hospital, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab General
F2942-C17517	C17517	Wheelchair primary mobility means age indicator	Indicator used related age of participant/subject when they first began to use a wheelchair as their primary means of mobility	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2870-C07191	C07191	The Galveston Orientation and Amnesia Test (GOAT) - Year identification score	Scored ability to identify the current year, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab General
F2939-C14639	C14639	Ambulatory status	Status that reflects the participant's ability to walk	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2870-C07178	C07178	The Galveston Orientation and Amnesia Test (GOAT) - Born date score	Scored ability to accurately state date of birth, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab Comprehensive
F2870-C07186	C07186	The Galveston Orientation and Amnesia Test (GOAT) - Pre injury event score	Scored ability to accurately recall the last event before injury, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab Comprehensive
F2870-C07184	C07184	The Galveston Orientation and Amnesia Test (GOAT) - Post injury event score	Scored ability to provide specific details about the first event after injury, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab General

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.