CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 4296
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21893 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) error count

Number of errors in the Thirty Seconds and Counting Task (30-SACT), as part of Brief Test of Adult Cognition by Telephone (BTACT)

NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) NeuroRehab NeuroRehab Comprehensive
C20567 TBI Quality of Life (TBI-QOL) - Cognition general concerns T-score

The T-Score related to perceived difficulties in everyday cognitive abilities such as learning, memory, attention, and concentration, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab Comprehensive
C21371 Immediate Post-Concussion Assessment Testing (ImPACT) - Current participation level year count

Number of years experience at current participation level, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C53782 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 16 text

The word used for Word Reading item 16, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C21443 Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory delay percent correct percentage value

The delayed memory percent correct number on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C50137 Strengths and Difficulties Questionnaire (SDQ) - Good attention span scale

The scale indicating the participant/subject has a good attention span, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C21424 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Numbness tingling assessment score

The subject's current numbness or tingling rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C21387 Immediate Post-Concussion Assessment Testing (ImPACT) - Exam type

Type of exam conducted, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C19140 Discipline types

The types of disciplines relevant to rehabilitation services

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C20580 TBI Quality of Life (TBI-QOL) - Pain interference T-score

The T-Score related to consequences of pain on relevant aspects of one's life, including the extent to which pain hinders engagement with social, cognitive, emotional, physical, and recreational activities, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Epidemiology
C21440 Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory learning correct percentage value

The learning percent correct number on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Acute Sport Related Concussion
C21950 Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale

Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
C21384 Immediate Post-Concussion Assessment Testing (ImPACT) - Dyslexia diagnosis indicator

Indicator of whether the subject has been diagnosed with dyslexia, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C20975 Frontal Systems Behavior Scale (FrSBE) - Sits around doing nothing frequency

Frequency of sitting around doing nothing as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C55717 PROMIS - Self Efficacy managing emotions avoid upset thoughts scale

Scale related to an individual being able to avoid upsetting thoughts, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab General
C52961 Hopkins Verbal Learning Test Revised (HVLT-R) - Recognition discrimination Index raw value

The raw value calculated for the Recognition Discrimination Index, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)

NeuroRehab Supplemental-Highly Recommended Hopkins Verbal Learning Test - Revised (HVLT-R) NeuroRehab NeuroRehab General
C20840 Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken ready start day past week scale

The scale which represents the extent to which the participant felt ready to start the day upon waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment NeuroRehab NeuroRehab Stroke
C58505 Speak communication device type other text

Text describing the presence of any other type of speaking communication device used

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab General
C53763 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 5 score

The score for Word Reading item 5, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C21933 Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale

Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C56297 NIH Toolbox Cognitive – Cognition total composition unadjusted scale score

The total composite unadjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C55673 PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale

Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Stroke
C55625 PROMIS - Emotional Distress depression guilty scale

Scale related to the individual feeling guilty, as part of the PROMIS Emotional Distress Depression

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) NeuroRehab NeuroRehab General
C18634 Brief Symptom Inventory-18 (BSI18)- Numbness or tingling scale

The scale for the participant's distress from numbness or tingling in parts of their body

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Acute Sport Related Concussion
Displaying 201 - 225 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.