CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20565 TBI Quality of Life (TBI-QOL) - Fatigue T-score

The T-Score related to sensations ranging from tiredness to an overwhelming, debilitating and sustained sense of exhaustion that likely decreases one's ability to execute daily activities and function normally in family or social roles, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Epidemiology
C50135 Strengths and Difficulties Questionnaire (SDQ) - Gets along better adults than children scale

The scale indicating if the participant/subject gets along better with adults than with other children, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C18647 Brief Symptom Inventory-18 (BSI18)- Global Severity Index normalized T score

Normalized T score for Global Severity Index symptom scale

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Acute Sport Related Concussion
C52380 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Irritable scale

Scale that rates the severity of how the subject now suffers from being irritable, easily angered as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C20791 Quality of Life - Relax trouble assessment past week scale

The scale which represents how often the participant had trouble relaxing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab Comprehensive
C18633 Brief Symptom Inventory-18 (BSI18)- terror or panic scale

The scale for the participant's distress from spells of terror or panic

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Comprehensive
C20438 Beck Depression Inventory II (BDI-II) - Appetite change scale

Scale identifying level of change in appetite, as part of the Beck Depression Inventory II (BDI-II)

NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) NeuroRehab NeuroRehab General
C21290 Quality of Life - Awake pain past week scale

The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance

NeuroRehab Supplemental-Highly Recommended Neuro-QOL Adult Bank - Sleep Disturbance NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C21103 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale invalid score indicator

Indicator if Disinhibition subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE)

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab General
C55715 PROMIS - Self Efficacy managing emotions avoid discourage scale

Scale related to an individual being able to avoid feeling discouraged, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab General
C20581 TBI Quality of Life (TBI-QOL) - Resilience T-score

The T-Score related to subjective experience of the process and outcome of successfully adapting to difficult or challenging life experiences, especially highly stressful or traumatic events, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Acute Hospitalized TBI
C21950 Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale

Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
C53808 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 30 text

The word used for Word Reading item 30, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C21395 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual memory Reliable Change Index (RCI) exceeded indicator

Indicator of whether the subject's composite score in visual memory exceeded the Reliable Change Index (RCI), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Acute Sport Related Concussion
C56301 NIH Toolbox Cognitive – Picture vocabulary age 3 up raw score

The raw score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C52367 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty scale

Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the second other difficulty

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C53804 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 28 text

The word used for Word Reading item 28, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C21826 Beck Anxiety Inventory (BAI) - Feel faint lightheaded bother scale

Scale that represents how much the participant has been bothered by feeling faint/ lightheaded as part of the Beck Anxiety Inventory (BAI)

NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) NeuroRehab NeuroRehab General
C21845 Brief Test of Adult Cognition by Telephone (BTACT) - Category fluency test correct response count

Number of correct responses in the Category Fluency Test, as part of Brief Test of Adult Cognition by Telephone (BTACT)

NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) NeuroRehab NeuroRehab Comprehensive
C21411 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Balance problem score

The subject's current balance problems rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C58505 Speak communication device type other text

Text describing the presence of any other type of speaking communication device used

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab General
C20551 TBI Quality of Life (TBI-QOL) - Ability participate social role activity T-score

The T-Score related to degree of involvement in one's usual social roles, activities, and responsibilities, including work, family, friends, and leisure, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Comprehensive
C21933 Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale

Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C21464 Immediate Post-Concussion Assessment Testing (ImPACT) - Invalid assessment indicator

Indicator of whether the data is considered to be invalid, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C54466 Dynamic Gait Index (DGI) - Gait task stair score

Score for the subject/participant's performance walking up stairs for the Steps task, as part of the Dynamic Gait Index (DGI)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.