CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20440 Beck Depression Inventory II (BDI-II) - Tiredness fatigue scale

Scale identifying level of tiredness or fatigue, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab General
C21292 Quality of Life - Middle night physical tension past week scale

The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance

 NeuroRehab Supplemental-Highly Recommended Neuro-QOL Adult Bank - Sleep Disturbance True NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C55717 PROMIS - Self Efficacy managing emotions avoid upset thoughts scale

Scale related to an individual being able to avoid upsetting thoughts, as part of the PROMIS Self-Efficacy Managing Emotions

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions False NeuroRehab NeuroRehab General
C21105 Frontal Systems Behavior Scale (FrSBE) - Invalid score indicator

Indicator if Frontal Systems Behavior Scale (FrSBE) is invalid (has more than 5 questions missing)

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C55668 PROMIS - Dyspnea Functional limitations prepare meals scale

Scale related to an individual being able to prepare meals, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Stroke
C20840 Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken ready start day past week scale

The scale which represents the extent to which the participant felt ready to start the day upon waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment True NeuroRehab NeuroRehab Stroke
C52360 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Forgetfulness scale

Scale that rates the severity of how the subject now suffers from forgetfulness/poor memory as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Comprehensive
C54139 Victoria Symptom Validity Test (VSVT) - Total items correct number

The total number of easy and difficult items the subject correctly responded, as a part of the Victoria Symptom Validity Test (VSVT)

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab General
C55157 PROMIS - Alcohol use drink consumption indicator

Indicator of an individual's consumption of an alcoholic beverage within 30 days, as part of the PROMIS Alcohol Use

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False NeuroRehab NeuroRehab Comprehensive
C20422 Beck Depression Inventory II (BDI-II) - Agitation scale

Scale identifying level of agitation, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab Comprehensive
C56496 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference participate social activity ability scale

Scale which represents how often the participant felt pain interfered with participant's ability to participate in social activity over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference False NeuroRehab NeuroRehab Stroke
C53897 Stroop Color and Word Test (SCW) - Word age educate predict score

Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)

 NeuroRehab Supplemental-Highly Recommended Stroop Test True NeuroRehab NeuroRehab General
C55274 Post Concussion Symptom Scale (PCSS) - Nervousness symptom score

The score for nervousness symptoms as part of the Post Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale False NeuroRehab NeuroRehab Comprehensive
C55694 PROMIS - Dyspnea Functional limitations walk 50 steps scale

Scale related to an individual being able to walk 50 steps (faster than your usual speed) for 50 steps without stopping, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Comprehensive
C20502 Grooved Pegboard Test (GPT) - Dominant hand time T-score

Hand time T-score to determine statistical significance for the hand time and pegs placed/dropped, as part of Grooved Pegboard Test (GPT)

 NeuroRehab Supplemental-Highly Recommended Grooved Pegboard Test True NeuroRehab NeuroRehab General
C21430 Immediate Post-Concussion Assessment Testing (ImPACT) - Total symptom score

The subject's total symptom score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C21582 Medical Symptom Validity Test (MSVT) - Free recall percentage value

The percentage value related to free recall in the Medical Symptom Validity Test (MSVT)

 NeuroRehab Supplemental-Highly Recommended Medical Symptom Validity Test (MSVT) True NeuroRehab NeuroRehab General
C53767 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 7 score

The score for Word Reading item 7, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21374 Immediate Post-Concussion Assessment Testing (ImPACT) - Memory loss post injury concussion result count

Number of concussions that resulted in loss of memory of events immediately after injury, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C56329 NIH Toolbox Cognitive - Dimensional change card sort age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Dimensional Change Card Sort Age 3+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C21446 Immediate Post-Concussion Assessment Testing (ImPACT) - X and O interference total correct count

The interference total correct on the X's and O's module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Subacute Sport Related Concussion
C18638 Brief Symptom Inventory-18 (BSI18)- Thoughts of ending life scale

The scale for the participant's distress from thoughts of ending their life

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C53731 Wide Range Achievement Test 4 (WRAT-4) - Letter 3 text

The letter used for Letter Recognition item 3, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C21427 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Concentration difficultly assessment score

The subject's current difficulty concentrating rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Comprehensive
C54251 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Semantic fluency total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Semantic Fluency Subtest

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab General
Displaying 176 - 200 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.