CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 4416
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20477 Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition discrimination index percentage value

Percentile for Recognition Discrimination Index portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab Comprehensive
C52363 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Nausea scale

Scale that rates the severity of how the subject now suffers from nausea and/or vomiting as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab TBI Comprehensive
C20582 TBI Quality of Life (TBI-QOL) - Satisfaction social roles activities T-score

The T-Score related to satisfaction with involvement in one's usual social roles, activities, and responsibilities, including work, family, friends, and leisure, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Acute Hospitalized TBI
C21951 Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C53809 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 30 score

The score for Word Reading item 30, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C21396 Immediate Post-Concussion Assessment Testing (ImPACT) - Visual motor speed composite score

Visual motor speed composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C56302 NIH Toolbox Cognitive – Picture vocabulary age 3 up computed score

The computed score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab Comprehensive
C53805 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 28 score

The score for Word Reading item 28, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21827 Beck Anxiety Inventory (BAI) - Fear die bother scale

Scale that represents how much the participant has been bothered by the fear of dying as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab General
C21846 Brief Test of Adult Cognition by Telephone (BTACT) - Mean latency time lapse millisecond measurement

Mean latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab Comprehensive
C21412 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Dizziness score

The subject's current dizziness rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C52361 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the first 3 items excluding ratings of 1

Sum of the ratings for the first three items of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Concussion/Mild TBI
C52373 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - First other difficulty text

The free-text field related to 'The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)- First other difficulty scale' specifying the first other difficulty text

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C58506 IPAD application text

Text describing the type of iPad application used

 NeuroRehab Supplemental-Highly Recommended Devices: Communication False NeuroRehab NeuroRehab General
C20553 TBI Quality of Life (TBI-QOL) - Anger T-score

The T-Score related to verbal and non-verbal components of self-reported angry mood (irritability, frustration), negative social cognitions (interpersonal sensitivity, envy, disagreeableness), and efforts to control anger, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Comprehensive
C21934 Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale

Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C21018 Frontal Systems Behavior Scale (FrSBE) - Childish humor frequency scale

Frequency of being overly silly, has childish sense of humour as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C55626 PROMIS - Emotional Distress depression emotionally exhaust scale

Scale related to the individual feeling emotionally exhausted, as part of the PROMIS Emotional Distress Depression

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) False NeuroRehab NeuroRehab General
C58570 Static upper extremity orthosis splint use anatomic site laterality type

Laterality type of static upper extremity orthosis splints anatomic site used by participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C50135 Strengths and Difficulties Questionnaire (SDQ) - Gets along better adults than children scale

The scale indicating if the participant/subject gets along better with adults than with other children, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C20831 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stay asleep trouble assessment past week scale

The scale which represents how often the participant had trouble staying asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance True NeuroRehab NeuroRehab Stroke
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C58491 Activity daily living device type

Type for all activity of daily living devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C56497 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference household chore ability scale

Scale which represents how often the participant felt pain interfered with household chores over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference False NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C21069 Frontal Systems Behavior Scale (FrSBE) - Apathy subscale raw score

Raw score for Apathy subscale as part of Frontal Systems Behavior Scale (FrSBE)

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
Displaying 151 - 175 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.