CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 4296
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55679 PROMIS - Dyspnea Functional limitations walk 10 step on flat ground scale

Scale related to an individual being able to walk 10 steps/paces on flat ground at a normal speed without stopping, as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Stroke
C55708 PROMIS - Self Efficacy managing emotions focus on something else scale

Scale related to an individual being able to focus on something else to decrease anxiety, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab Comprehensive
C58575 Activity daily living device type use indicator

Indicator whether the participant/subject currently uses the selected types of activity of daily living devices

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C55309 PROMIS - Negative consequences sick when drink scale

Scale related to the individual getting sick after he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Comprehensive
C20433 Beck Depression Inventory II (BDI-II) - Indecisiveness scale

Scale identifying level of indecisiveness, as part of the Beck Depression Inventory II (BDI-II)

NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) NeuroRehab NeuroRehab Comprehensive
C20838 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleepiness concentration difficulty past week scale

The scale which represents how often the participant had a hard time concentrating because he/she was sleepy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment NeuroRehab NeuroRehab Comprehensive
C21925 Balance falls frequency

The frequency as related to falls

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C53952 Stroop Color and Word Test (SCW) - Interference T score

Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

NeuroRehab Supplemental-Highly Recommended Stroop Test NeuroRehab NeuroRehab General
C55672 PROMIS - Dyspnea Functional limitations lift something 10 20 pound scale

Scale related to an individual being able to lift something weighing 10-20 lbs (about 4.5 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C18634 Brief Symptom Inventory-18 (BSI18)- Numbness or tingling scale

The scale for the participant's distress from numbness or tingling in parts of their body

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Acute Sport Related Concussion
C53193 Controlled Oral Word Association Test (COWAT) - Lexical Fluency Total Score

Total score related to lexical fluency, as a part of the Controlled Oral Word Association Test (COWAT)

NeuroRehab Supplemental-Highly Recommended Controlled Oral Word Association Test (COWAT) Subtest of the Multilingual Aphasia Examination (MAE) NeuroRehab NeuroRehab General
C21441 Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory delay hit count

The number of delayed hits on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C54133 Victoria Symptom Validity Test (VSVT) - Total items correct per block number

The total number of items the subject correctly responded per block, as a part of the Victoria Symptom Validity Test (VSVT)

NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) NeuroRehab NeuroRehab Comprehensive
C21385 Immediate Post-Concussion Assessment Testing (ImPACT) - Autism diagnosis indicator

Indicator of whether the subject has been diagnosed with autism, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C56344 NIH Toolbox Cognitive – Picture sequence memory age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C21457 Immediate Post-Concussion Assessment Testing (ImPACT) - Color match average commissions reaction time duration

The average commissions reaction time duration on the color match module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C53742 Wide Range Achievement Test 4 (WRAT-4) - Letter 10 score

Score for Letter Recognition item 10, as a part of the Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C21438 Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory immediate hit count

The number of immediate hits on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C54467 Functional Gait Assessment (FGA) - Total score

Total score for the subject/participant's performance on all tasks, as part of the Functional Gait Assessment (FGA)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C54262 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value

Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
C21401 Immediate Post-Concussion Assessment Testing (ImPACT) - Reaction time Reliable Change Index (RCI) exceeded indicator

Indicator of whether the subject's composite score in reaction time exceeded the Reliable Change Index (RCI), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C53738 Wide Range Achievement Test 4 (WRAT-4) - Letter 6 score

Score for Letter Recognition item 6, as a part of the Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C20562 TBI Quality of Life (TBI-QOL) - Emotional behavioral dyscontrol T-score

The T-Score related to a set of injury and/or treatment related manifestations including disinhibition, emotional lability, irritability, impatience, and impulsiveness, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Concussion/Mild TBI
C53867 Wide Range Achievement Test 4 (WRAT-4) - Letter 7 text

The letter used for Letter Recognition item 7, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C21454 Immediate Post-Concussion Assessment Testing (ImPACT) - Color match total correct count

The number of total correct on the color match module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Acute Sport Related Concussion
Displaying 76 - 100 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.