CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52360 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Forgetfulness scale

Scale that rates the severity of how the subject now suffers from forgetfulness/poor memory as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Acute Sport Related Concussion
C53772 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 11 text

The word used for Word Reading item 11, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20582 TBI Quality of Life (TBI-QOL) - Satisfaction social roles activities T-score

The T-Score related to satisfaction with involvement in one's usual social roles, activities, and responsibilities, including work, family, friends, and leisure, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C58880 Assistive device type

Type for all assistive devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C54458 Dynamic Gait Index (DGI) - Step around obstacle task score

Score for the subject/participant's performance on the Step Around Obstacles task, as part of the Dynamic Gait Index (DGI)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Comprehensive
C58500 Transportation device type other text

Text describing the presence of any other transfer device used

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C21084 Frontal Systems Behavior Scale (FrSBE) - Total T score

T score for all scales as part of Frontal Systems Behavior Scale (FrSBE)

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C50101 Strengths and Difficulties Questionnaire (SDQ) - Argument with adults scale

The scale indicating if the participant/subject is argumentative with adults , as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C58486 Static lower extremity stretch orthosis splint use frequency type

Frequency type with which the participant/subject uses their static lower extremity stretching orthosis/splints, if applicable

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C52955 Hopkins Verbal Learning Test Revised (HVLT-R) - Total recall raw score

The raw score for Total Recall, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)

 NeuroRehab Supplemental-Highly Recommended Hopkins Verbal Learning Test - Revised (HVLT-R) True NeuroRehab NeuroRehab General
C21667 Therapy rehabilitation ICD 10 CM code

ICD-10-CM code that describes the therapy or rehabilitation received by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C56291 NIH Toolbox Cognitive – Cognition early childhood composite unadjusted scale score

The unadjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C21414 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Falling asleep trouble score

The subject's current trouble falling asleep rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Subacute Sport Related Concussion
C54260 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type

Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab Comprehensive
C20449 Brief Visuospatial Memory Test - Revised (BVMT-R) - Trial 2 T-score

T-score for Trial 2 portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab General
C55271 Post Concussion Symptom Scale (PCSS) - Noise sensitivity symptom score

The score for noise sensitivity symptoms as part of the Post Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C53824 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 38 text

The word used for Word Reading item 38, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C21411 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Balance problem score

The subject's current balance problems rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C56322 NIH Toolbox Cognitive - List scoring working memory age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab Comprehensive
C21374 Immediate Post-Concussion Assessment Testing (ImPACT) - Memory loss post injury concussion result count

Number of concussions that resulted in loss of memory of events immediately after injury, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Subacute Sport Related Concussion
C53820 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 36 text

The word used for Word Reading item 36, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21864 Beck Anxiety Inventory (BAI) - Unable relax bother scale

Scale that represents how much the participant has been bothered by unable to relax as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab General
C21895 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) total score

Total number of digits produced score, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab Comprehensive
C21427 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Concentration difficultly assessment score

The subject's current difficulty concentrating rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C20580 TBI Quality of Life (TBI-QOL) - Pain interference T-score

The T-Score related to consequences of pain on relevant aspects of one's life, including the extent to which pain hinders engagement with social, cognitive, emotional, physical, and recreational activities, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Comprehensive
Displaying 76 - 100 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.