CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20808 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restlessness assessment past week scale

The scale which represents how often the participant's sleep was restless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance NeuroRehab NeuroRehab Stroke
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C21480 Rey Auditory Verbal Learning Test (RAVLT) - Word list A type

The type as related to word used as part of List A in the Rey Auditory Verbal Learning Test (RAVLT)

NeuroRehab Supplemental-Highly Recommended Rey Auditory Verbal Learning Test (RAVLT) NeuroRehab NeuroRehab Comprehensive
C55268 Post Concussion Symptom Scale (PCSS) - Sleep loss symptom score

The score for loss of sleep symptoms as part of the Post Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Subacute Sport Related Concussion
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core NeuroRehab NeuroRehab Comprehensive
C56517 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference hard to plan social activities unsure pain scale

Scale related to how often it was hard to plan social activities because an individual didn't know if he/she would be in pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C21024 Frontal Systems Behavior Scale (FrSBE) - Misbehavior apology frequency scale

Frequency of apologizing for misbehaviour (for example, apologizes for swearing) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C20790 Quality of Life - Sleep difficultly assessment past week scale

The scale which represents how often the participant had difficulty sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab General
C56304 NIH Toolbox Cognitive – Picture vocabulary age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C21427 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Concentration difficultly assessment score

The subject's current difficulty concentrating rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C55300 PROMIS - Negative consequences angry when drink scale

Scale related to the individual feeling angry when he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Stroke
C20822 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale

The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance NeuroRehab NeuroRehab Comprehensive
C54273 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus language difference score

Difference score calculated as a subtraction of Language index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab Comprehensive
C21371 Immediate Post-Concussion Assessment Testing (ImPACT) - Current participation level year count

Number of years experience at current participation level, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C20467 Brief Visuospatial Memory Test - Revised (BVMT-R) - Delayed recall percentage value

Percentile for Delayed Recall portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) NeuroRehab NeuroRehab General
C55694 PROMIS - Dyspnea Functional limitations walk 50 steps scale

Scale related to an individual being able to walk 50 steps (faster than your usual speed) for 50 steps without stopping, as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Stroke
C53837 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 45 score

The score for Word Reading item 45, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C21424 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Numbness tingling assessment score

The subject's current numbness or tingling rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Acute Sport Related Concussion
C56339 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C21387 Immediate Post-Concussion Assessment Testing (ImPACT) - Exam type

Type of exam conducted, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C55326 PROMIS - Negative consequences dizzy after drink scale

Scale related to an individual feeling dizzy after he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Comprehensive
C53833 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 43 score

The score for Word Reading item 43, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C21368 Immediate Post-Concussion Assessment Testing (ImPACT) - Current sport type

Type of sport the subject participates currently, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C21863 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task question type

Type of questions asked in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) NeuroRehab NeuroRehab General
C21440 Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory learning correct percentage value

The learning percent correct number on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
Displaying 76 - 100 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.