CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54139 Victoria Symptom Validity Test (VSVT) - Total items correct number

The total number of easy and difficult items the subject correctly responded, as a part of the Victoria Symptom Validity Test (VSVT)

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab Comprehensive
C58574 Static lower extremity stretch orthosis splint use anatomic site laterality type

Side of the body of the anatomic site of the static lower extremity stretching orthosis/splints use

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C21391 Immediate Post-Concussion Assessment Testing (ImPACT) - Verbal memory composite percentage value

The percentile of the subject's verbal memory composite score (if available), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C21463 Immediate Post-Concussion Assessment Testing (ImPACT) - Three letter average correct count

The average number of correctly counted items on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Subacute Sport Related Concussion
C56350 NIH Toolbox Cognitive – Oral reading recognition english age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C21444 Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory total correct percentage value

The total percent correct on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Comprehensive
C53748 Wide Range Achievement Test 4 (WRAT-4) - Letter 13 score

Score for Letter Recognition item 13, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C21407 Immediate Post-Concussion Assessment Testing (ImPACT) - Sleep last night hour duration

Duration (in hours) the subject slept last night, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C54268 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score

Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab General
C20574 TBI Quality of Life (TBI-QOL) - Independence T-score

The T-Score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Concussion/Mild TBI
C53744 Wide Range Achievement Test 4 (WRAT-4) - Letter 11 score

Score for Letter Recognition item 11, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21460 Immediate Post-Concussion Assessment Testing (ImPACT) - Three letters percent of total letters correct percentage value

The numeric percentage of total letters correct on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C53873 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 18 text

The word used for Word Reading item 18, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C19500 Assessment performed date

The date of assessment of the examination being performed

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab TBI Comprehensive
C21404 Immediate Post-Concussion Assessment Testing (ImPACT) - Impulse control Reliable Change Index (RCI) exceeded indicator

Indicator of whether the subject's composite score in impulse control exceeded the Reliable Change Index (RCI), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Comprehensive
C53869 Wide Range Achievement Test 4 (WRAT-4) - Letter 8 text

The letter used for Letter Recognition item 8, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20583 TBI Quality of Life (TBI-QOL) - Self esteem T-score

The T-Score related to assessment of one's emotional, evaluative, and cognitive perceptions of competence and worth, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Comprehensive
C55798 Test of Premorbid Functioning - Reading based IQ equivalent estimate value

The estimate of the subject's IQ, based on an equivalent value the subject's reading score, as part of the Test of Premorbid Functioning

 NeuroRehab Supplemental-Highly Recommended Test of Premorbid Functioning False NeuroRehab NeuroRehab General
C18634 Brief Symptom Inventory-18 (BSI18)- Numbness or tingling scale

The scale for the participant's distress from numbness or tingling in parts of their body

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C52367 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty scale

Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the second other difficulty

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C21501 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest item number

Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

 NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False NeuroRehab NeuroRehab Comprehensive
C20425 Beck Depression Inventory II (BDI-II) - Guilty feeling scale

Scale identifying level of guilty feelings, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab General
C54467 Functional Gait Assessment (FGA) - Total score

Total score for the subject/participant's performance on all tasks, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C21071 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale raw score

Raw score for Disinhibition subscale as part of Frontal Systems Behavior Scale (FrSBE)

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C55271 Post Concussion Symptom Scale (PCSS) - Noise sensitivity symptom score

The score for noise sensitivity symptoms as part of the Post Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale False NeuroRehab NeuroRehab Acute Sport Related Concussion
Displaying 51 - 75 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.