CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 4416
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21369 Immediate Post-Concussion Assessment Testing (ImPACT) - Primary position event class text

Primary type of position/event/class, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Comprehensive
C21865 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task response type

Type of responses in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab General
C21441 Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory delay hit count

The number of delayed hits on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C55273 Post Concussion Symptom Scale (PCSS) - Sadness symptom score

The score for sadness symptoms as part of the Post Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale False NeuroRehab NeuroRehab Acute Sport Related Concussion
C20562 TBI Quality of Life (TBI-QOL) - Emotional behavioral dyscontrol T-score

The T-Score related to a set of injury and/or treatment related manifestations including disinhibition, emotional lability, irritability, impatience, and impulsiveness, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Acute Hospitalized TBI
C21936 Pediatric Quality of Life Inventory (PedsQL) - Problem bath shower alone scale

Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C53798 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 25 text

The word used for Word Reading item 25, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C21385 Immediate Post-Concussion Assessment Testing (ImPACT) - Autism diagnosis indicator

Indicator of whether the subject has been diagnosed with autism, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C19500 Assessment performed date

The date of assessment of the examination being performed

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C53794 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 23 text

The word used for Word Reading item 23, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21857 Beck Anxiety Inventory (BAI) - Terrified afraid bother scale

Scale that represents how much the participant has been bothered by feeling terrified or afraid as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab Comprehensive
C58512 Access communication device type

Type for all access communication devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Communication False NeuroRehab NeuroRehab Comprehensive
C58624 Transfer transportation device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C54456 Functional Gait Assessment (FGA) - Step over obstacle task score

Score for the subject/participant's performance on the Step Over Obstacles task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C20994 Frontal Systems Behavior Scale (FrSBE) - Fabrication incredible story when unable remember frequency scale

Frequency of making up fantastic stories when unable to remember something as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C55615 PROMIS - Emotional Distress depression discouraged about future scale

Scale related to the individual feeling discouraged about the future, as part of the PROMIS Emotional Distress Depression

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) False NeuroRehab NeuroRehab General
C52367 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty scale

Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the second other difficulty

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Comprehensive
C58494 Bath device type other text

Text describing the presence of any other bathing device used

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C20817 Patient-Reported Outcome Measurement Information System (PROMIS) - Prior sleep lay bed long duration past week scale

The scale which represents how often the participant laid in bed for hours waiting to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance True NeuroRehab NeuroRehab Stroke
C56486 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference day to day activity scale

Scale which represents how much the participant felt pain interfered with day to day activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference False NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C21044 Frontal Systems Behavior Scale (FrSBE) - Activity spontaneous involvement frequency scale

Frequency of getting involved with activities spontaneously (such as hobbies) as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C55603 PROMIS - Emotional Distress depression nothing could cheer up scale

Scale related to the individual feeling that nothing could cheer him/her up, as part of the PROMIS Emotional Distress Depression

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) False NeuroRehab NeuroRehab Comprehensive
C55309 PROMIS - Negative consequences sick when drink scale

Scale related to the individual getting sick after he/she drank, as part of the PROMIS Negative Consequences

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False NeuroRehab NeuroRehab Stroke
C20836 Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale

The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance True NeuroRehab NeuroRehab Comprehensive
C54282 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab Comprehensive
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.