CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 4126 - 4150 of 4296
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11854 Frontal Behavioral Inventory (FBI) - comprehension semantic deficit score

The score the caregiver gives for the participant's/subject's comprehension (semantic) deficit, as part of the Frontal Behavioral Inventory (FBI) form

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab Comprehensive
C20416 National Institutes of Health Stroke Scale (NIHSS) - Motor arm amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Stroke
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)

NeuroRehab Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) NeuroRehab NeuroRehab General
C15910 Assessment date and time

The date of participant's injury

NeuroRehab Supplemental-Highly Recommended Stroop Test NeuroRehab NeuroRehab General
C18105 Quality of Life in Swallowing Disorders (SWAL-QOL) - help questionnaire indicator

Indicator of whether subject received help to complete this questionnaire or not,

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Comprehensive
C17386 Parkinson's Disease Quality of Life (PDQUALIF) - food preparation eating independent 7 days scale

Rating scale for preparing and eating independently in the past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09306 Apathy Scale (AS) - Effort scale

The scale related to subject's desire to put effort into things, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C07021 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire alcoholic beverage frequency

Frequency for how often the participant/subject had a strong desire to consume alcoholic beverages (beer, wine, spirits, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C14286 Therapy or rehabilitation received status

If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C09943 World Health Organization Quality of Life (WHOQOL-BREF) - leisure activity opportunity scale

Scale used to assess leisure activity opportunity, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C07066 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Hallucinogen fail control indicator

Indicator for whether the participant/subject has ever tried, but failed to control, cut down or stop using hallucinogens (LSD, acid, mushrooms, PCP, Special K, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C10718 Wheelchair use indicator

Indicator whether the participant/subject uses a wheelchair

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C01581 Weight unit of measure

Unit of measure for the weight numerical value

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab General
C07092 Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator

Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) NeuroRehab NeuroRehab Comprehensive
C07083 Alcohol Use Disorders Identification Test (AUDIT) - Cannot stop drink alcohol frequency score

Score for the frequency within the last year with which the subject found himself or herself unable to stop drinking once he or she started, as part of the Alcohol Use Disorders Identification Test (AUDIT)

NeuroRehab Supplemental-Highly Recommended Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) NeuroRehab NeuroRehab Comprehensive
C10319 Quality of Life in Swallowing Disorders (SWAL-QOL) - intake feeding tube indicator

Scale assessing how true the following statement has been for the participant during the last month: Do you now take any food or liquid through a feeding tube? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C11862 Frontal Behavioral Inventory (FBI) - restlessness roaming score

The score the caregiver gives for the participant's/subject's restlessness/roaming, as part of the Frontal Behavioral Inventory (FBI) form

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab Comprehensive
C10279 Quality of Life in Swallowing Disorders (SWAL-QOL) - rare realization hunger indicator

Scale assessing how true the following statement has been for the participant during the last month: I'm rarely hungry anymore, as part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C13239 National Institutes of Health Stroke Scale (NIHSS) - Motor leg score

Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Comprehensive
C09314 Apathy Scale (AS) - Apathetic scale

The scale related to subject's self reflection on personal apathetic state, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C07029 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire other substance frequency

Frequency for how often the participant/subject had a strong desire to use other substances not previously listed in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C09951 World Health Organization Quality of Life (WHOQOL-BREF) - friend support scale

Scale used to assess family support satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C07074 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Total e score

Score for the total sum of all the question E scores (amphetamine type stimulants), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
Displaying 4126 - 4150 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.