CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54462 Functional Gait Assessment (FGA) - Gait task support base narrow step count

Count of steps taken by the subject/participant in performing the Gait With Narrow Base of Support task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C21009 Frontal Systems Behavior Scale (FrSBE) - Inflexible frequency scale

Frequency of being inflexible, unable to change routines as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C52373 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - First other difficulty text

The free-text field related to 'The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)- First other difficulty scale' specifying the first other difficulty text

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Comprehensive
C58618 Mobility device use propel type other text

Text describing other propulsion type of mobility device use

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C54446 Dynamic Gait Index (DGI) - Gait level surface task score

Score for the level-surface gait task, as part of the Dynamic Gait Index (DGI)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Comprehensive
C58488 Position device type

Type for all positioning devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C21058 Frontal Systems Behavior Scale (FrSBE) - Action sequence error frequency scale

Frequency of mixing up a sequence, getting confused when doing several things in a row as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C50082 Strengths and Difficulties Questionnaire (SDQ) - Temper scale

The scale of how often participant/subject loses their temper, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C20498 Brief Visuospatial Memory Test - Revised (BVMT-R) - Delay interval minute time

Time of delay interval in minutes for Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab General
C55271 Post Concussion Symptom Scale (PCSS) - Noise sensitivity symptom score

The score for noise sensitivity symptoms as part of the Post Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C56279 NIH Toolbox Cognitive – Cognition crystallized composite unadjusted scale score

The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C21402 Immediate Post-Concussion Assessment Testing (ImPACT) - Impulse control composite score

Impulse control composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Subacute Sport Related Concussion
C21492 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

 NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False NeuroRehab NeuroRehab General
C54695 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health True NeuroRehab NeuroRehab General
C53848 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 52 text

The word used for Word Reading item 52, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C54248 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure copy total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Copy Subtest

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab Comprehensive
C21455 Immediate Post-Concussion Assessment Testing (ImPACT) - Color match average correct reaction time duration

The average correct reaction time duration on the color match module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C20489 Brief Visuospatial Memory Test - Revised (BVMT-R) - Copy raw score

Raw score for Copy portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab Comprehensive
C55259 Post Concussion Symptom Scale (PCSS) - Time after concussion count

The number of days or hours following concussion as part of the Post Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C20585 TBI Quality of Life (TBI-QOL) - Upper extremity function T-score

The T-Score related to ability to carry out various activities involving digital, manual, and reach-related functions, ranging from fine motor to self-care (activities of daily living), as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Acute Hospitalized TBI
C53812 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 32 text

The word used for Word Reading item 32, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C21399 Immediate Post-Concussion Assessment Testing (ImPACT) - Reaction time composite score

Reaction time composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab Comprehensive
C52371 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the 13 items (4-16) excluding ratings of 1

Sum of the ratings for the 13 items (4-16) of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C53808 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 30 text

The word used for Word Reading item 30, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
Displaying 276 - 300 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.