CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C18641	Brief Symptom Inventory-18 (BSI18)- Somatization normalized T score	Normalized T score for somatization symptom scale	NeuroRehab Supplemental-Highly Recommended	Brief Symptom Inventory-18 (BSI-18)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C56482	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment life scale	Scale which represents how often the participant felt pain interfered with the enjoyment of social activities over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
C21037	Frontal Systems Behavior Scale (FrSBE) - Sexual intimacy interest frequency scale	Frequency of being interested in sex as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale	NeuroRehab Supplemental-Highly Recommended	Frontal Systems Behavioral Scale (FrSBe)	True	NeuroRehab	NeuroRehab Comprehensive
C55599	PROMIS - Emotional Distress depression worthless scale	Scale related to the individual feeling worthless, as part of the PROMIS Emotional Distress Depression	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items)	False	NeuroRehab	NeuroRehab Comprehensive
C55305	PROMIS - Negative consequences took risks when drink scale	Scale related to the individual taking risks when he/she drank, as part of the PROMIS Negative Consequences	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Alcohol: Negative Consequences	False	NeuroRehab	NeuroRehab Stroke
C20829	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale	The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Sleep Disturbance	True	NeuroRehab	NeuroRehab Comprehensive
C21376	Immediate Post-Concussion Assessment Testing (ImPACT) - Game miss count	Total number of games missed as a result of concussions, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C55261	Post Concussion Symptom Scale (PCSS) - Nausea symptom score	The score for nausea symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C56482	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment life scale	Scale which represents how often the participant felt pain interfered with the enjoyment of social activities over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
C21429	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Visual problem score	The subject's current visual problems rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21392	Immediate Post-Concussion Assessment Testing (ImPACT) - Verbal memory Reliable Change Index (RCI) exceed indicator	Indicator of whether the subject's composite score in verbal memory exceeded the Reliable Change Index (RCI), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C55333	PROMIS - Negative consequences trouble trusting people when drink scale	Scale related to an individual having trouble trusting other people when he/she drank, as part of the PROMIS Negative Consequences	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Alcohol: Negative Consequences	False	NeuroRehab	NeuroRehab Comprehensive
C21507	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span subtest total raw score	Total score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span subtest	NeuroRehab Supplemental-Highly Recommended	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	NeuroRehab	NeuroRehab Comprehensive
C52367	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty scale	Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the second other difficulty	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab TBI Comprehensive
C21373	Immediate Post-Concussion Assessment Testing (ImPACT) - Confusion concussion result count	Number of concussions that resulted in confusion, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21445	Immediate Post-Concussion Assessment Testing (ImPACT) - X and O memory total correct count	The memory total correct on the X's and O's module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C55277	Post Concussion Symptom Scale (PCSS) - Feel slow symptom score	The score for symptoms of feeling "slow" as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C53851	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 53 score	The score for Word Reading item 53, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
C20568	TBI Quality of Life (TBI-QOL) - Grief loss T-score	The T-Score related to emotional reactions of grief (the natural process of reacting to a loss) such as anger, guilt, anxiety, sadness, and despair, as part of the TBI Quality of Life (TBI-QOL)	NeuroRehab Supplemental-Highly Recommended	Traumatic Brain Injury - Quality of Life (TBI-QOL)	False	NeuroRehab	NeuroRehab Acute Hospitalized TBI
C21942	Pediatric Quality of Life Inventory (PedsQL) - Problem gain friend difficulty scale	Scale of problems with other kids not wanting to be their friend, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
C53816	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 34 text	The word used for Word Reading item 34, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
C21389	Immediate Post-Concussion Assessment Testing (ImPACT) - Test version type	Type of test version used for the exam, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C20503	Grooved Pegboard Test (GPT) - Dominant hand pegs dropped count	Number of pegs dropped during hand test, as part of Grooved Pegboard Test (GPT)	NeuroRehab Supplemental-Highly Recommended	Grooved Pegboard Test	True	NeuroRehab	NeuroRehab Comprehensive
C21461	Immediate Post-Concussion Assessment Testing (ImPACT) - Three letters average time to first click duration	The duration of average time to first click on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C54247	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest	NeuroRehab Supplemental-Highly Recommended	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.