CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 4412
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C22899 Gross Motor Function Classification System (GMFCS) - Level scale

The scale level as reference to the Gross Motor Function Classification System (GMFCS).

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C19247 Subject ID

Subject identification ID

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20580 TBI Quality of Life (TBI-QOL) - Pain interference T-score

The T-Score related to consequences of pain on relevant aspects of one's life, including the extent to which pain hinders engagement with social, cognitive, emotional, physical, and recreational activities, as part of the TBI Quality of Life (TBI-QOL).

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Epidemiology
C51621 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere friendship status

The status of interference with friendships related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ).

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C21440 Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory learning correct percentage value

The learning percent correct number on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT).

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C18628 Brief Symptom Inventory-18 (BSI18)- Nausea scale

The scale for the participant's distress from nausea or upset stomach.

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C52362 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Poor concentration scale

Scale that rates the severity of how the subject now suffers from poor concentration as compared with before the accident, as part of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ).

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Subacute Sport Related Concussion
C54452 Functional Gait Assessment (FGA) - Gait head turn vertical task score

Score for the subject/participant's performance on the Gait With Vertical Head Turns task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C20975 Frontal Systems Behavior Scale (FrSBE) - Sits around doing nothing frequency

Frequency of sitting around doing nothing as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C20766 Quality of Life - Anxiousness assessment past week scale

The scale which represents how often the participant felt anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety True NeuroRehab NeuroRehab General
C18640 Brief Symptom Inventory-18 (BSI18)- Somatization raw score

Raw score for somatization symptom scale.

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Comprehensive
C21289 Quality of Life - Bad dream sleep trouble past week scale

The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance.

 NeuroRehab Supplemental-Highly Recommended Neuro-QOL Adult Bank - Sleep Disturbance True NeuroRehab NeuroRehab Stroke
C55722 PROMIS - Self Efficacy managing emotions handle stress of treatment scale

Scale related to an individual being able to manage his/her stress of going for treatment of his/her medical condition, as part of the PROMIS Self-Efficacy Managing Emotions

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions False NeuroRehab NeuroRehab General
C55673 PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale

Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Stroke
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

 Core General Core False NeuroRehab NeuroRehab Comprehensive
C20845 Patient-Reported Outcome Measurement Information System (PROMIS) - Day problem poor sleep past week scale

The scale which represents how often the participant had problems during the day because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment True NeuroRehab NeuroRehab Stroke
C54144 Victoria Symptom Validity Test (VSVT) - Percentile score

Estimate of whether or not a score is unusually high or low for a given population, as a part of the Victoria Symptom Validity Test (VSVT).

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab General
C55303 PROMIS - Negative consequences trouble keep appointment scale

Scale related to the individual having trouble keeping appointments after he/she drank, as part of the PROMIS Negative Consequences

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False NeuroRehab NeuroRehab Comprehensive
C20427 Beck Depression Inventory II (BDI-II) - Self-dislike scale

Scale identifying level of self-dislike, as part of the Beck Depression Inventory II (BDI-II).

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab Comprehensive
C56501 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability remember scale

Scale which represents how often pain interfered with participant's ability to remember things over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference False NeuroRehab NeuroRehab Stroke
C53902 Stroop Color and Word Test (SCW) - Color residual score

Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)

 NeuroRehab Supplemental-Highly Recommended Stroop Test True NeuroRehab NeuroRehab General
C55279 Post Concussion Symptom Scale (PCSS) - Difficulty concentrating symptom score

The score for symptoms of having difficulty concentrating as part of the Post Concussion Symptom Scale (PCSS)

 NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale False NeuroRehab NeuroRehab Comprehensive
C55666 PROMIS - Dyspnea Functional limitations walk 50 step on flat ground scale

Scale related to an individual being able to walk 50 steps/paces on flat ground at a normal speed without stopping, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C53071 Controlled Oral Word Association Test (COWAT) - Letter S Word Count

The count of distinct words the participant has named that begin with the letter S, as a part of the Controlled Oral Word Association Test (COWAT)

 NeuroRehab Supplemental-Highly Recommended Controlled Oral Word Association Test (COWAT) Subtest of the Multilingual Aphasia Examination (MAE) True NeuroRehab NeuroRehab Comprehensive
C21435 Immediate Post-Concussion Assessment Testing (ImPACT) - Word memory delay correct distractor count

The number of delay correct distractors identified on the word memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT).

 NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) True NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
Displaying 1 - 25 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.