CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2869-C53841	C53841	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 47 score	The score for Word Reading item 47, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
F2905-C21428	C21428	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Memory difficulty assessment score	The subject's current difficulty remembering rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2877-C56344	C56344	NIH Toolbox Cognitive Picture sequence memory age 3 up age adjusted scale score	The age adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab Comprehensive
F2905-C21391	C21391	Immediate Post-Concussion Assessment Testing (ImPACT) - Verbal memory composite percentage value	The percentile of the subject's verbal memory composite score (if available), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
F2884-C21506	C21506	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest total raw score	Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest	NeuroRehab Supplemental-Highly Recommended	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	NeuroRehab	NeuroRehab Comprehensive
F2919-C54694	C54694	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale	Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Scale v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2869-C53837	C53837	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 45 score	The score for Word Reading item 45, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
F2905-C21372	C21372	Immediate Post-Concussion Assessment Testing (ImPACT) - Loss of consciousness concussion result count	Number of concussions that resulted in loss of consciousness (LOC), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
F2872-C21881	C21881	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task test type	Type of experimental task, as part of Brief Test of Adult Cognition by Telephone(BTACT)	NeuroRehab Supplemental-Highly Recommended	Brief Test of Adult Cognition by Telephone (BTACT)	False	NeuroRehab	NeuroRehab General
F2905-C21444	C21444	Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory total correct percentage value	The total percent correct on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
F2906-C55276	C55276	Post Concussion Symptom Scale (PCSS) - Numbness symptom score	The score for numbness symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2903-C20567	C20567	TBI Quality of Life (TBI-QOL) - Cognition general concerns T-score	The T-Score related to perceived difficulties in everyday cognitive abilities such as learning, memory, attention, and concentration, as part of the TBI Quality of Life (TBI-QOL)	NeuroRehab Supplemental-Highly Recommended	Traumatic Brain Injury - Quality of Life (TBI-QOL)	False	NeuroRehab	NeuroRehab Acute Hospitalized TBI
F2869-C53801	C53801	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 26 score	The score for Word Reading item 26, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
F2905-C21388	C21388	Immediate Post-Concussion Assessment Testing (ImPACT) - Exam language type	Type of language the exam was conducted in, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2905-C21460	C21460	Immediate Post-Concussion Assessment Testing (ImPACT) - Three letters percent of total letters correct percentage value	The numeric percentage of total letters correct on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
F2863-C52360	C52360	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Forgetfulness scale	Scale that rates the severity of how the subject now suffers from forgetfulness/poor memory as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
F2869-C53797	C53797	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 24 score	The score for Word Reading item 24, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
F2904-C21864	C21864	Beck Anxiety Inventory (BAI) - Unable relax bother scale	Scale that represents how much the participant has been bothered by unable to relax as part of the Beck Anxiety Inventory (BAI)	NeuroRehab Supplemental-Highly Recommended	Beck Anxiety Inventory (BAI)	True	NeuroRehab	NeuroRehab Comprehensive
F2896-C21002	C21002	Frontal Systems Behavior Scale (FrSBE) - Unable finish task frequency scale	Frequency of starting things but failing to finish them as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale	NeuroRehab Supplemental-Highly Recommended	Frontal Systems Behavioral Scale (FrSBe)	True	NeuroRehab	NeuroRehab General
F2909-C51638	C51638	Strengths and Difficulties Questionnaire (SDQ) - Prosocial score	The prosocial score as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2863-C52370	C52370	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Dizziness scale	Scale that rates the severity of how the subject now suffers from dizziness as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C58577	C58577	Eat drink assistive device type	Type of eating / drinking device currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C58485	C58485	Dynamic lower extremity stretch orthosis splint use anatomic site	Anatomic site of the dynamic lower extremity stretching orthosis/splints use	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2896-C21052	C21052	Frontal Systems Behavior Scale (FrSBE) - Gets along well with others frequency scale	Frequency of getting along well with others as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale	NeuroRehab Supplemental-Highly Recommended	Frontal Systems Behavioral Scale (FrSBe)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C50079	C50079	Strengths and Difficulties Questionnaire (SDQ) - Restless overactive scale	The scale of how restless, and overactive a participant/subject is, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.