CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18641 Brief Symptom Inventory-18 (BSI18)- Somatization normalized T score

Normalized T score for somatization symptom scale

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C56482 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment life scale

Scale which represents how often the participant felt pain interfered with the enjoyment of social activities over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C21037 Frontal Systems Behavior Scale (FrSBE) - Sexual intimacy interest frequency scale

Frequency of being interested in sex as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C55599 PROMIS - Emotional Distress depression worthless scale

Scale related to the individual feeling worthless, as part of the PROMIS Emotional Distress Depression

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) NeuroRehab NeuroRehab Comprehensive
C55305 PROMIS - Negative consequences took risks when drink scale

Scale related to the individual taking risks when he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Stroke
C20829 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep toss turn night assessment past week scale

The scale which represents how often the participant tossed and turned at night in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance NeuroRehab NeuroRehab Comprehensive
C21376 Immediate Post-Concussion Assessment Testing (ImPACT) - Game miss count

Total number of games missed as a result of concussions, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C55261 Post Concussion Symptom Scale (PCSS) - Nausea symptom score

The score for nausea symptoms as part of the Post Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C56482 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment life scale

Scale which represents how often the participant felt pain interfered with the enjoyment of social activities over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C21429 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Visual problem score

The subject's current visual problems rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Acute Sport Related Concussion
C21392 Immediate Post-Concussion Assessment Testing (ImPACT) - Verbal memory Reliable Change Index (RCI) exceed indicator

Indicator of whether the subject's composite score in verbal memory exceeded the Reliable Change Index (RCI), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C55333 PROMIS - Negative consequences trouble trusting people when drink scale

Scale related to an individual having trouble trusting other people when he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Comprehensive
C21507 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span subtest total raw score

Total score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span subtest

NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) NeuroRehab NeuroRehab Comprehensive
C52367 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty scale

Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the second other difficulty

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab TBI Comprehensive
C21373 Immediate Post-Concussion Assessment Testing (ImPACT) - Confusion concussion result count

Number of concussions that resulted in confusion, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C21445 Immediate Post-Concussion Assessment Testing (ImPACT) - X and O memory total correct count

The memory total correct on the X's and O's module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C55277 Post Concussion Symptom Scale (PCSS) - Feel slow symptom score

The score for symptoms of feeling "slow" as part of the Post Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Acute Sport Related Concussion
C53851 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 53 score

The score for Word Reading item 53, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C20568 TBI Quality of Life (TBI-QOL) - Grief loss T-score

The T-Score related to emotional reactions of grief (the natural process of reacting to a loss) such as anger, guilt, anxiety, sadness, and despair, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Acute Hospitalized TBI
C21942 Pediatric Quality of Life Inventory (PedsQL) - Problem gain friend difficulty scale

Scale of problems with other kids not wanting to be their friend, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
C53816 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 34 text

The word used for Word Reading item 34, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C21389 Immediate Post-Concussion Assessment Testing (ImPACT) - Test version type

Type of test version used for the exam, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Acute Sport Related Concussion
C20503 Grooved Pegboard Test (GPT) - Dominant hand pegs dropped count

Number of pegs dropped during hand test, as part of Grooved Pegboard Test (GPT)

NeuroRehab Supplemental-Highly Recommended Grooved Pegboard Test NeuroRehab NeuroRehab Comprehensive
C21461 Immediate Post-Concussion Assessment Testing (ImPACT) - Three letters average time to first click duration

The duration of average time to first click on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C54247 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab Comprehensive
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.