CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2939-C57102	C57102	Sleep problem diagnosis type	Type of diagnosis for sleep problem	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C56954	C56954	Dynamic upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic upper extremity orthosis/splints, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C58482	C58482	Static upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their static upper extremity orthosis/splints, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C56954	C56954	Dynamic upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic upper extremity orthosis/splints, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C58482	C58482	Static upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their static upper extremity orthosis/splints, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C56953	C56953	Cane stick use type	Type of cane which the participant/subject uses, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C56953	C56953	Cane stick use type	Type of cane which the participant/subject uses, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C56952	C56952	Crutch use type	Type of crutches which the participant/subject uses, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C56952	C56952	Crutch use type	Type of crutches which the participant/subject uses, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2942-C56951	C56951	Walker use type	Type of walker which the participant/subject uses, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2942-C56951	C56951	Walker use type	Type of walker which the participant/subject uses, if applicable	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2912-C56520	C56520	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep stand position scale	Scale related to how often pain kept individual from getting into a standing position in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56520	C56520	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep stand position scale	Scale related to how often pain kept individual from getting into a standing position in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56520	C56520	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep stand position scale	Scale related to how often pain kept individual from getting into a standing position in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56498	C56498	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability make trip from home scale	Scale which represents how often the participant felt pain interfered with the ability to make trip from home over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56506	C56506	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain keep from socialize other scale	Scale related to how often pain kept an individual from socializing with others in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56514	C56514	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent stand 30 minute more scale	Scale related to how often pain prevented an individual from standing for more than 30 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56514	C56514	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent stand 30 minute more scale	Scale related to how often pain prevented an individual from standing for more than 30 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56482	C56482	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment life scale	Scale which represents how often the participant felt pain interfered with the enjoyment of social activities over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56490	C56490	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere with family life scale	Scale related to how much pain interfered with an individual's family life in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56492	C56492	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work ability scale	Scale related to how much pain interfered with an individual's ability to work (including work at home) in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56492	C56492	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work ability scale	Scale related to how much pain interfered with an individual's ability to work (including work at home) in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56500	C56500	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference household chore ability scale	Scale which represents how often the participant felt pain interfered with ability to do household chores over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56500	C56500	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference household chore ability scale	Scale which represents how often the participant felt pain interfered with ability to do household chores over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56508	C56508	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make discourage scale	Scale related to how often pain made an individual feel discouraged in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.