CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 4296
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health NeuroRehab NeuroRehab General
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health NeuroRehab NeuroRehab Comprehensive
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health NeuroRehab NeuroRehab Comprehensive
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health NeuroRehab NeuroRehab General
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core NeuroRehab NeuroRehab Comprehensive
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core NeuroRehab NeuroRehab General
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core NeuroRehab NeuroRehab General
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core NeuroRehab NeuroRehab Comprehensive
C58632 Access communication device type another body part specify text

Text describing the presence of another body part for type of access communication device used

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab Comprehensive
C58632 Access communication device type another body part specify text

Text describing the presence of another body part for type of access communication device used

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab General
C58626 Transfer device type other text

Text describing the presence of any other transfer device used

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C58626 Transfer device type other text

Text describing the presence of any other transfer device used

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C58625 Communication device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab General
C58625 Communication device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab Comprehensive
C58624 Transfer transportation device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C58624 Transfer transportation device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C58622 Number minutes day duration

Duration in minutes per day a stander used by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C58623 Number days week count

Count of days per week a stander used by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C58622 Number minutes day duration

Duration in minutes per day a stander used by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C58623 Number days week count

Count of days per week a stander used by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
Displaying 51 - 75 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.