CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2911-C55694	C55694	PROMIS - Dyspnea Functional limitations walk 50 steps scale	Scale related to an individual being able to walk 50 steps (faster than your usual speed) for 50 steps without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2911-C55688	C55688	PROMIS - Dyspnea Functional limitations carry weigh less 5 pound scale	Scale related to an individual being able to carry something weighing less than 5 lbs (about 2 kg, like a houseplant) from one room to another, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2911-C55681	C55681	PROMIS - Dyspnea Functional limitations walk 5 stairs without stop scale	Scale related to an individual being able to walk up 5 stairs without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55674	C55674	PROMIS - Dyspnea Functional limitations walk half mile without stop scale	Scale related to an individual being able to walk for half a mile (almost 1 km) without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive
F2911-C55689	C55689	PROMIS - Dyspnea Functional limitations carry weigh 5 10 pound scale	Scale related to an individual being able to carry something weighing 5-10 lbs (about 2-4.5 kg, like a basket of clothes) from one room to another, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55682	C55682	PROMIS - Dyspnea Functional limitations walk 10 stairs without stop scale	Scale related to an individual being able to walk up 10 stairs (1 flight) without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive
F2911-C55697	C55697	PROMIS - Dyspnea Functional limitations talk while walk scale	Scale related to an individual being able to talk while walking, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55690	C55690	PROMIS - Dyspnea Functional limitations get in or out car scale	Scale related to an individual being able to get in or out of a car, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive
F2911-C55672	C55672	PROMIS - Dyspnea Functional limitations lift something 10 20 pound scale	Scale related to an individual being able to lift something weighing 10-20 lbs (about 4.5 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2911-C55665	C55665	PROMIS - Dyspnea Functional limitations dress yourself without help scale	Scale related to an individual being able to dress him/herself without help, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55680	C55680	PROMIS - Dyspnea Functional limitations walk half mile on ground scale	Scale related to an individual being able to walk half mile (almost 1 km) on flat ground at a normal speed without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2911-C55673	C55673	PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale	Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55668	C55668	PROMIS - Dyspnea Functional limitations prepare meals scale	Scale related to an individual being able to prepare meals, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive
F2911-C55695	C55695	PROMIS - Dyspnea Functional limitations walk 1 mile no stop scale	Scale related to an individual being able to walk for at least 1 mile (a little more than 1.5 km) without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2911-C55682	C55682	PROMIS - Dyspnea Functional limitations walk 10 stairs without stop scale	Scale related to an individual being able to walk up 10 stairs (1 flight) without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55675	C55675	PROMIS - Dyspnea Functional limitations take bath without help scale	Scale related to an individual being able to take a bath without help, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive
F2911-C55690	C55690	PROMIS - Dyspnea Functional limitations get in or out car scale	Scale related to an individual being able to get in or out of a car, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55683	C55683	PROMIS - Dyspnea Functional limitations walk 30 stairs without stop scale	Scale related to an individual being able to walk up 30 stairs (3 flights) without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive
F2911-C55665	C55665	PROMIS - Dyspnea Functional limitations dress yourself without help scale	Scale related to an individual being able to dress him/herself without help, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2911-C55691	C55691	PROMIS - Dyspnea Functional limitations dining out scale	Scale related to an individual being able to dine out, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive
F2911-C55673	C55673	PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale	Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2911-C55666	C55666	PROMIS - Dyspnea Functional limitations walk 50 step on flat ground scale	Scale related to an individual being able to walk 50 steps/paces on flat ground at a normal speed without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55681	C55681	PROMIS - Dyspnea Functional limitations walk 5 stairs without stop scale	Scale related to an individual being able to walk up 5 stairs without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2911-C55674	C55674	PROMIS - Dyspnea Functional limitations walk half mile without stop scale	Scale related to an individual being able to walk for half a mile (almost 1 km) without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2911-C55669	C55669	PROMIS - Dyspnea Functional limitations wash dishes scale	Scale related to an individual being able to wash dishes, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.