CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core NeuroRehab NeuroRehab General
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core NeuroRehab NeuroRehab Comprehensive
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core NeuroRehab NeuroRehab Comprehensive
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core NeuroRehab NeuroRehab General
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Acute Sport Related Concussion
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core General Core NeuroRehab NeuroRehab Comprehensive
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Comprehensive
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C00007 Birth date

Date (and time, if applicable and known) the participant was born

Core General Core NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C00007 Birth date

Date (and time, if applicable and known) the participant was born

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Subacute Sport Related Concussion
C02304 Adverse event study intervention relatedness investigator assessment grade

Grade of the causality between the treatment modality/intervention and the specific adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C02304 Adverse event study intervention relatedness investigator assessment grade

Grade of the causality between the treatment modality/intervention and the specific adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C02308 Adverse event during study indicator

Indicator of whether the participant experienced any adverse events during the study

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C02308 Adverse event during study indicator

Indicator of whether the participant experienced any adverse events during the study

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.