CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2877-C56280	C56280	NIH Toolbox Cognitive Cognition crystallized composite age adjusted scale score	The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab Comprehensive
F2877-C56280	C56280	NIH Toolbox Cognitive Cognition crystallized composite age adjusted scale score	The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
F2877-C56279	C56279	NIH Toolbox Cognitive Cognition crystallized composite unadjusted scale score	The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab Comprehensive
F2877-C56279	C56279	NIH Toolbox Cognitive Cognition crystallized composite unadjusted scale score	The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
F2877-C56278	C56278	NIH Toolbox Cognitive Cognition crystallized composite computed score	The computed score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab Comprehensive
F2877-C56278	C56278	NIH Toolbox Cognitive Cognition crystallized composite computed score	The computed score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
F2877-C56277	C56277	NIH Toolbox Cognitive Cognition crystallized composite raw score	The raw score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab Comprehensive
F2877-C56277	C56277	NIH Toolbox Cognitive Cognition crystallized composite raw score	The raw score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
F2867-C55798	C55798	Test of Premorbid Functioning - Reading based IQ equivalent estimate value	The estimate of the subject's IQ, based on an equivalent value the subject's reading score, as part of the Test of Premorbid Functioning	NeuroRehab Supplemental-Highly Recommended	Test of Premorbid Functioning	False	NeuroRehab	NeuroRehab Comprehensive
F2867-C55798	C55798	Test of Premorbid Functioning - Reading based IQ equivalent estimate value	The estimate of the subject's IQ, based on an equivalent value the subject's reading score, as part of the Test of Premorbid Functioning	NeuroRehab Supplemental-Highly Recommended	Test of Premorbid Functioning	False	NeuroRehab	NeuroRehab General
F2867-C55797	C55797	Test of Premorbid Functioning - Simple demographic based IQ equivalent estimate value	The simple estimate of the subject's IQ, based on a demographic equivalent score, as part of the Test of Premorbid Functioning	NeuroRehab Supplemental-Highly Recommended	Test of Premorbid Functioning	False	NeuroRehab	NeuroRehab Comprehensive
F2867-C55797	C55797	Test of Premorbid Functioning - Simple demographic based IQ equivalent estimate value	The simple estimate of the subject's IQ, based on a demographic equivalent score, as part of the Test of Premorbid Functioning	NeuroRehab Supplemental-Highly Recommended	Test of Premorbid Functioning	False	NeuroRehab	NeuroRehab General
F2867-C55796	C55796	Test of Premorbid Functioning - Raw score	The raw score that the subject earned, as part of the Test of Premorbid Functioning	NeuroRehab Supplemental-Highly Recommended	Test of Premorbid Functioning	False	NeuroRehab	NeuroRehab Comprehensive
F2867-C55796	C55796	Test of Premorbid Functioning - Raw score	The raw score that the subject earned, as part of the Test of Premorbid Functioning	NeuroRehab Supplemental-Highly Recommended	Test of Premorbid Functioning	False	NeuroRehab	NeuroRehab General
F2918-C55716	C55716	PROMIS - Self Efficacy managing emotions hear about symptoms scale	Scale related to an individual being able to hear about symptoms and side effects without getting discouraged, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab General
F2918-C55724	C55724	PROMIS - Self Efficacy managing emotions manage anxiety telling others scale	Scale related to an individual being able to manage his/her anxiety about telling others he/she have health problems, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab General
F2918-C55709	C55709	PROMIS - Self Efficacy managing emotions prevent illness from discourage scale	Scale related to an individual being able to prevent his/her illness from making him/her feel discouraged, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab Comprehensive
F2918-C55717	C55717	PROMIS - Self Efficacy managing emotions avoid upset thoughts scale	Scale related to an individual being able to avoid upsetting thoughts, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab Comprehensive
F2918-C55725	C55725	PROMIS - Self Efficacy managing emotions manage anger insensitive comment scale	Scale related to an individual being able to manage his/her anger when others make insensitive comments about his/her health problems, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab Comprehensive
F2918-C55708	C55708	PROMIS - Self Efficacy managing emotions focus on something else scale	Scale related to an individual being able to focus on something else to decrease anxiety, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab General
F2918-C55709	C55709	PROMIS - Self Efficacy managing emotions prevent illness from discourage scale	Scale related to an individual being able to prevent his/her illness from making him/her feel discouraged, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab General
F2918-C55717	C55717	PROMIS - Self Efficacy managing emotions avoid upset thoughts scale	Scale related to an individual being able to avoid upsetting thoughts, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab General
F2918-C55725	C55725	PROMIS - Self Efficacy managing emotions manage anger insensitive comment scale	Scale related to an individual being able to manage his/her anger when others make insensitive comments about his/her health problems, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab General
F2918-C55710	C55710	PROMIS - Self Efficacy managing emotions avoid feeling helpless scale	Scale related to an individual being able to avoid feeling helpless, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab Comprehensive
F2918-C55718	C55718	PROMIS - Self Efficacy managing emotions handle negative feelings scale	Scale related to an individual being able to handle negative feelings, as part of the PROMIS Self-Efficacy Managing Emotions	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions	False	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.