CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56516 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 10 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 10 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56483 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference ability participate leisure scale

Scale which represents how much pain interfered with ability to participate in leisure activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56491 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference with relationship others scale

Scale related to how much pain interfered with an individual's relationships with other people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56499 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment social activity scale

Scale which represents how often the participant felt pain interfered with the enjoyment of social activity over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56507 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain severe think nothing else scale

Scale related to how often an individual's pain was so severe he/she could think of nothing else in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56515 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 30 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 30 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56515 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 30 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 30 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56485 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere ability concentrate scale

Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56485 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere ability concentrate scale

Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56493 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain sleep difficulty scale

Scale related to how difficult pain made it to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56493 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain sleep difficulty scale

Scale related to how difficult pain made it to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56501 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability remember scale

Scale which represents how often pain interfered with participant's ability to remember things over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56501 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability remember scale

Scale which represents how often pain interfered with participant's ability to remember things over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56509 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make anxious scale

Scale related to how often pain made an individual feel anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56509 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make anxious scale

Scale related to how often pain made an individual feel anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56517 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference hard to plan social activities unsure pain scale

Scale related to how often it was hard to plan social activities because an individual didn't know if he/she would be in pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56484 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference personal relationship scale

Scale which represents how often the participant felt pain interfered in close personal relationships in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56492 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work ability scale

Scale related to how much pain interfered with an individual's ability to work (including work at home) in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56500 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference household chore ability scale

Scale which represents how often the participant felt pain interfered with ability to do household chores over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56508 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make discourage scale

Scale related to how often pain made an individual feel discouraged in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56516 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 10 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 10 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56516 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 10 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 10 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56486 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference day to day activity scale

Scale which represents how much the participant felt pain interfered with day to day activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56486 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference day to day activity scale

Scale which represents how much the participant felt pain interfered with day to day activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56494 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain feel burden scale

Scale related to how much pain felt like a burden to an individual in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
Displaying 276 - 300 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.