CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56496 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference participate social activity ability scale

Scale which represents how often the participant felt pain interfered with participant's ability to participate in social activity over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56504 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make feel depressed scale

Scale related to how often pain made an individual feel depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56504 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make feel depressed scale

Scale related to how often pain made an individual feel depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56512 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent from stand more 1 hour scale

Scale related to how often pain prevented an individual from standing more than one hour in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56512 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent from stand more 1 hour scale

Scale related to how often pain prevented an individual from standing more than one hour in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56488 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56488 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56495 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work around home scale

Scale which represents how often the participant felt pain interfered with work around the home over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56503 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference tasks away from home scale

Scale which represents how much pain interfered with participant doing tasks away from home (e.g., getting groceries, running errands) over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56511 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent from walk more 1 mile scale

Scale related to how often pain prevented an individual from walking more than 1 mile in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56519 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 1 hour more scale

Scale related to how often an individual's pain prevented him/her from sitting for more than one hour in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56519 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 1 hour more scale

Scale related to how often an individual's pain prevented him/her from sitting for more than one hour in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56487 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere with enjoy recreational activity scale

Scale related to how much pain interfered with an individual's enjoyment of recreational activities in the past 7 days, as part of the PROMIS Pain Interference

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56489 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference fun scale

Scale which represents how often the participant felt pain interfered with the things they would usually do for fun over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56497 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference household chore ability scale

Scale which represents how often the participant felt pain interfered with household chores over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56497 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference household chore ability scale

Scale which represents how often the participant felt pain interfered with household chores over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56505 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain distress scale

Scale related to how often pain distressed individual in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56505 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain distress scale

Scale related to how often pain distressed individual in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56513 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make difficult plan social activity scale

Scale related to how often pain made it difficult for an individual to plan social activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56481 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference difficult take new information pain scale

Scale related to how difficult it was for an individual to take new information because of pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56481 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference difficult take new information pain scale

Scale related to how difficult it was for an individual to take new information because of pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56489 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference fun scale

Scale which represents how often the participant felt pain interfered with the things they would usually do for fun over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56496 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference participate social activity ability scale

Scale which represents how often the participant felt pain interfered with participant's ability to participate in social activity over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56504 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make feel depressed scale

Scale related to how often pain made an individual feel depressed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C56512 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent from stand more 1 hour scale

Scale related to how often pain prevented an individual from standing more than one hour in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
Displaying 251 - 275 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.