CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Disease Name

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
C00311	Birth weight report value	Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab General
C00311	Birth weight report value	Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab Comprehensive
C22613	Home modification durable medical equipment type	If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C22613	Home modification durable medical equipment type	If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C22612	Home modification provide indicator	Indicates if the participant/subject was provided with any home modifications	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C22612	Home modification provide indicator	Indicates if the participant/subject was provided with any home modifications	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C17517	Wheelchair primary mobility means age indicator	Indicator used related age of participant/subject when they first began to use a wheelchair as their primary means of mobility	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C17517	Wheelchair primary mobility means age indicator	Indicator used related age of participant/subject when they first began to use a wheelchair as their primary means of mobility	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C10708	Wheelchair primary mobility means age value	Age of participant/subject when they first began to use a wheelchair as their primary means of mobility	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C10708	Wheelchair primary mobility means age value	Age of participant/subject when they first began to use a wheelchair as their primary means of mobility	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C59011	Walking primary assistive device daily use duration not applicable status	Status indicating that the amount of time per day using the primary assistive walking device does not apply to the subject/participant	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C59011	Walking primary assistive device daily use duration not applicable status	Status indicating that the amount of time per day using the primary assistive walking device does not apply to the subject/participant	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C58503	Communication device category type other text	The free-text field related to 'Communication devices category type', specifying other text	NeuroRehab Supplemental-Highly Recommended	Devices: Communication	False	NeuroRehab	NeuroRehab Comprehensive
C58503	Communication device category type other text	The free-text field related to 'Communication devices category type', specifying other text	NeuroRehab Supplemental-Highly Recommended	Devices: Communication	False	NeuroRehab	NeuroRehab General
C58502	Communication devices category type	Type of category for all communication devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Communication	False	NeuroRehab	NeuroRehab General
C58502	Communication devices category type	Type of category for all communication devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Communication	False	NeuroRehab	NeuroRehab Comprehensive
C22609	Communication device new provide indicator	Whether the participant/subject was provided with new communication device (i.e., touch screen)	NeuroRehab Supplemental-Highly Recommended	Devices: Communication	False	NeuroRehab	NeuroRehab Comprehensive
C22609	Communication device new provide indicator	Whether the participant/subject was provided with new communication device (i.e., touch screen)	NeuroRehab Supplemental-Highly Recommended	Devices: Communication	False	NeuroRehab	NeuroRehab General
C58882	Assistive device other text	The free-text field related to 'Assistive device type' specifying other text. Type for all assistive devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C58882	Assistive device other text	The free-text field related to 'Assistive device type' specifying other text. Type for all assistive devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C58879	Assistive device use indicator	Whether the participant/subject uses an assistive device (e.g., wheelchair)	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.